For people with hearing loss, a lack of assistive listening devices in an auditorium is as much a barrier to enjoyment of a performance as a steep flight of stairs would be to someone with a mobility disorder.
Empowering Others Through My Journey With Pendred Syndrome
I am 16 years old and live in California. I was born with Pendred syndrome, which is why I have severe to profound, bilateral hearing loss and wear hearing aids.
HHF Voices Concerns Over Proposed NIH Reorganization Plans
HHF urges caution if structural changes to the NIH will result in the shifting of resources away from already underfunded areas of research like hearing loss and related disorders.
Let’s Hear It for Hearing Access in Public Spaces
There are a lot of people with hearing loss out there. We need to come together to tell the world how to accommodate our needs, and why. If we stay silent, we cannot expect anything to improve.
Shock and Then Purpose
Bruna’s diagnosis at age 9 months is Usher syndrome type 1B. It is a rare disease, a recessive inherited disease that we, her parents, had given to her. It is a disease that we had bypassed, but not our daughter.
Stay Safe and Sound This Fourth of July
Independence Day is a celebration of our country’s birthday, and we’re so grateful for the service of our active members of the military and veterans—who are, as we know, disproportionately affected by hearing loss and tinnitus. But now evidence is emerging of additional, severe brain injuries affecting service members.
Progress Forward
This newly graduated high school student who wears a cochlear implant is making plans to pay it forward.
How to Advocate for Your Health With Providers
These experiences highlight the need for patients, especially women, to advocate for accurate diagnoses.
New Sounds, Thanks to Les Paul
The inventor of today’s recording techniques—with multiple ways to manipulate sound—would have been 109 this June 9. That would be Les Paul, the man whose signature is blazoned on the famous Gibson guitar.
Healthy Hearing Starts at Home
Even with this elevated awareness about the harm from excess noise, sometimes it’s hard to get this message to stick at home. Here is how I helped steer my kids, who are now teenagers, steer toward healthy hearing habits.