Hearing Health Blog
Our independent analysis of the clinical trials’ published data yields the following insights on gene therapy for hearing loss from otoferlin variants. The clinical trials provide the first validation of pharmacological treatments for hearing loss.
Right now we are actively recruiting volunteers with hearing loss to participate in an outpatient research study to understand the genes that cause non-syndromic autosomal dominant hearing loss (DFNA).
I’m now passionate about helping other moms live their own story of hope and healing amidst hearing loss in their children. I understand how overwhelming it feels for a mom to receive that first diagnosis that your child has hearing loss.
A teen learns about the genetic cause of her hearing loss, and is spreading the word to find out more.
Growing up in the 1980s, the message that I could achieve as much as my typical-hearing peers just did not exist. I can distinctly remember a school administrator telling my mother that I was going to struggle in my classes, as if I wasn’t even there in the room (and I heard him loud and clear).
