Hearing loss is definitely a challenge. It can separate us from hearing conversations, making us feel disconnected. But we try our best to do what’s necessary for our best hearing experience.
Auditory Input Regulates the Real-Time Coordination of Speech Movements
Our results are consistent with the theory that people rely on auditory information to coordinate the motor control of their vocal tract in service to speech production and opens up many new, critically important questions about people with congenital auditory deficits.
Hearing Our Way
Ten years ago, I embarked on a mission to support children with hearing loss. These kids are often one of the few, if not the only, children with hearing loss in their mainstream schools. My goal was to connect them with other kids like themselves and introduce them to inspiring role models who also have hearing loss.
Shock and Then Purpose
Bruna’s diagnosis at age 9 months is Usher syndrome type 1B. It is a rare disease, a recessive inherited disease that we, her parents, had given to her. It is a disease that we had bypassed, but not our daughter.
We Are Not Alone
Reaching out, learning about different organizations, and continuing to learn everything I can has made huge differences.
How Deaf–Hearing Marriages Can Thrive
The deaf–hearing couples who are happy tend to have higher levels of tolerance for differences. They are more open to unconventional ways of coping, communicating, and problem solving.
We Exist
Help Childen With Hearing Loss Be Camp-Ready
Alongside the typical checklist for camp preparations, such as bug spray and sunscreen, consider preparing for scenarios where your child may need to speak up about communication needs and otherwise self-advocate so they can fully participate.
Lucky to Be Different
Gene Therapy for Hearing Loss: Interpreting Preliminary Clinical Trial Results
Our independent analysis of the clinical trials’ published data yields the following insights on gene therapy for hearing loss from otoferlin variants. The clinical trials provide the first validation of pharmacological treatments for hearing loss.