My firsthand experience with hearing, speech, and language development challenges, both personally and as a parent, helped shape my writing.
A Chance Encounter
After the marriage he confided to my mom that he had developed a mild to moderate sound intolerance from frequent loud exposures in his construction job, from bulldozers, claw hammers, jackhammers, etc.
Using Personal Experience to Drive Change
As someone hard of hearing, I intimately understand the challenges of a world not always designed for me. This drives my mission to advocate for better access and representation.
My Musical Journey With Hearing Aids
Even though I may not hear every note perfectly, playing in a band has been a powerful experience. I connect with music not just through the sound of my trumpet but through feeling, vibration, and the very essence of music itself.
Writing the Book My Kids Needed
“Mara Hears in Style” is the book I wish my three children had when they were young and newly diagnosed with hearing loss. I wrote the book so that children who wear hearing aids will see themselves in a book and be seen, but I also wanted Mara's character to be relatable to all children.
A Board Game to Boost Communication
In 2018, while serving time in a New York prison, I committed to a path of self-reinvention and education. Despite the challenges of living with genetic disorders, a speech impediment, and a history of adversity, I made the decision to change my life by learning.
Confusion, Then Clarity
As parents, the sooner we acknowledge that the situation feels tough or overwhelming—and accept that it’s okay not to have all the answers—the sooner we can come to terms with the world of hearing loss and embrace it.
Reclaiming Being Called ’The Deaf Girl’
Surviving Usher Syndrome
I Heard My Footsteps
I wanted to create a story that not only celebrated the beauty of differences but also conveyed the importance of empathy and understanding. My heart was set on crafting a tale that could empower children with hearing loss while also educating their peers about the significance of inclusivity.