Bruna’s diagnosis at age 9 months is Usher syndrome type 1B. It is a rare disease, a recessive inherited disease that we, her parents, had given to her. It is a disease that we had bypassed, but not our daughter.
Collette and Christy: A Story About Friendship and Art
I discovered in the Smithsonian photographic archives of Howard Chandler Christy’s work the existence of two photos of what then appeared to be two separate portraits he painted of Collette Ramsey Baker in the late 1930s.
We Are Not Alone
Reaching out, learning about different organizations, and continuing to learn everything I can has made huge differences.
How Deaf–Hearing Marriages Can Thrive
The deaf–hearing couples who are happy tend to have higher levels of tolerance for differences. They are more open to unconventional ways of coping, communicating, and problem solving.
We Exist
Progress Forward
This newly graduated high school student who wears a cochlear implant is making plans to pay it forward.
How to Advocate for Your Health With Providers
These experiences highlight the need for patients, especially women, to advocate for accurate diagnoses.
Healthy Hearing Starts at Home
Even with this elevated awareness about the harm from excess noise, sometimes it’s hard to get this message to stick at home. Here is how I helped steer my kids, who are now teenagers, steer toward healthy hearing habits.
Who Hears the Hoot?
One dear friend and Native Elder was very hard of hearing. When I visited him we would be yelling at each other and having a good laugh.
Monster Rats and More
I’ve been collecting these anecdotes that I hope help those of us living with hearing loss to remember that laughter can be the best medicine