I am an associate professor at Oregon Health & Science University and became interested in the fields of hearing research, biomedical engineering, and neuroscience in part from my own hearing loss. I have had severe to profound hearing loss since early childhood, diagnosed at 2 ½ years old. Fitted with powerful hearing aids, I learned to speak and listen only with intensive speech therapy. I am the only person with a hearing loss in my family, so we always thought the cause was due to illness or possibly ototoxic drugs.
Why Suffer?
If you have a hearing loss, why suffer? The price you pay for not fully hearing well is far, far more than the perceived vanity lost from wearing hearing devices. This type of health benefit should be no more of a stigma than self improvement through wearing braces or glasses, and equally as commonplace.
Classic Rock to Classical
When I was in college, I saw the British rock band Jethro Tull in concert in Illinois, and was enthralled and starstruck as I listened to their music blasting through massive speakers only a few feet away from me. Although the sound was a freight train roaring through my ears, the distortion and pain were not enough to budge me from my spot in front of Ian Anderson and his electric flute.
Do the Best You Can Until You Know Better
There’s a quote I like by the writer, Maya Angelou: "Do the best you can until you know better. Then when you know better, do better.” So I got up off the mat, brushed myself off, mask in place, and put one foot in front of the other. I then went back to that drugstore and simply, in silence, found what I needed.
Distance Learning With a Hearing Loss
In the classroom, Alex has a captionist who ensures that he gets most of what the teacher is saying. He also carries a small microphone, or mini mic, for teachers to talk into so that their speech streams directly into his hearing aid and CI. Together, these two tactics were by no means perfect, but they worked for Alex. Unfortunately, like every other student across the world, Alex’s in-person education routine was interrupted a few months ago.
Dealing With a Sudden Loss of Hearing and Five Ways Loved Ones Can Help
I was a high school senior when I got the news that my moderate to severe, bilateral, congenital hearing loss had just got worse (genetic, 60-85 dB loss in both ears). “Discrimination dropped from 82% to 15% in her left ear and 72% to 12% in the right ear...” the audiologist reported, confirming my sudden, significant drop in hearing. Though I could hear the difference, I couldn’t believe it. The words stung more than I could have ever imagined.
Cochlear Implants: The Miracle Ears
In the hospital, our daughter, Saghar, passed the otoacoustic emissions (OAE) test, while our son, Sina, needed a follow up after failing his. The doctors indicated there might have been amniotic fluid left behind his eardrums. Always an optimist, I didn’t give Sina’s test results a second thought. However, Keyvan has always been a realist. He was worried. He was right to be.
Advocating for Relief from Noise
When I was 8 years old, an audiologist declared that I have hyperacusis, a rare hearing condition that makes noise unbearable with no available cure. Eight years later, loudness is still completely intolerable for me, and I am committed to improving the lives of everyone in my situation through online education and advocacy.
The Day It Happened
My hearing had been gradually declining. I knew that because I would hear ringing in my ears, and I knew what that meant. (Scary organ chord here.) It meant hearing loss. But how bad could it be, I figured. I’m still hearing. I’m still on the phone. I’m still talking to people. I can manage, right? This had been going on for several years and it was my new normal. Sure, I have to say “What?” a few times, but so what.
New Connections
I am remaining social and engaged in the world from the safety and comfort of my home. This is so important to do when you have a hearing loss. For almost three decades—since I was in my early 50s working as a secretary in a bank—I’ve so appreciated the value of hearing aids to stay connected and to be able to function. Now, I’m feeling immensely grateful for electronic communication, too.