Personal Stories

The Gene TMPRSS3 and Me

A teen learns about the genetic cause of her hearing loss, and is spreading the word to find out more.

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See Me Hear

As Lea grew older, she became acutely aware that she was different due to her hearing loss and hearing aids. I decided to create something that could let my daughter celebrate her magic ears, inspired by her favorite candy.

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Code Art

Generative art is defined by the use of an autonomous system that can produce imagery with minimal intervention by the artist, after writing the algorithm.

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Unplugged

Looking back, I see how some of the limitations we faced—only having a basic set, lots of equipment, and for me needing a quieter performance space—became hallmarks and the legacy of “MTV Unplugged.”

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One Man’s Mission to Help Others With Tinnitus

There are so many people out there who suffer from tinnitus. People who can’t get out of the house. I don’t like the way they are suffering but I try to instill hope in them.

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A Musician Learns From Tinnitus Across the Generations

As a mixing engineer, "carving” out these frequencies with my ears ringing from nightly concerts was a challenge but also provided me deep insight into what music must have sounded like to my mother who has tinnitus—disjointed and unbalanced.

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From Denial to Pride

At the age of 36, I have less than three degrees of peripheral vision, very severe night blindness to the point where I almost can’t function without assistance, and some hearing loss that makes it necessary to wear hearing aids.

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A Passion for Public Speaking

I went from being a severely hearing-impaired baby with an unsure future to being a state public speaking champion multiple times over. To share my passion for public speaking, during high school I hosted many workshops to inspire others to overcome their fear of public speaking.

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My BAHA Is My Superpower

I was born with Nager syndrome. It is a rare genetic disorder that includes conductive hearing loss, which delays speech development and affects the structure of a face.

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In Memoriam: Bryan Pollard of Hyperacusis Research

Bryan Pollard single-handedly created an entirely new diagnosis in the field of otology—pain hyperacusis—and worked tirelessly on behalf of those who suffered from it. He would become the most prominent patient-activist and the driving force for promoting research nationally focused on this condition.

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