NEWS UPDATE: Report on Hearing Health Care Released

By Morgan Leppla

Did you know it is estimated that 67 to 86 percent of people who might benefit from hearing aids do not have them? In a much-anticipated National Academies of Sciences, Engineering, and Medicine (NAS) report, published on June 2, 2016, NAS addresses the areas of hearing healthcare that currently prevent many of the 48 million Americans with hearing loss from seeking treatment, and provide 12 recommendations for improvement.

The NAS report recognizes that hearing loss detracts from individuals’ participation in family life, school, and work, and can affect anyone, young or old. People deserve the ability to communicate effectively, live healthily, and enjoy a high quality of life.

 

Specifically, the report recommends “key institutional, technological, and regulatory changes that would enable consumers to find and fully use the appropriate, affordable, high-quality services, technologies, and support they need.”

Currently, hearing healthcare is not focused on the consumer. However, through implementing the report’s recommendations, it would improve:

  • The quality and affordability of hearing healthcare

  • Access to accurate information that should be readily available to the public

  • Increasing the number of options for consumers to choose from, in order to best fit individual needs

  • Reducing stigma and bettering education

  • Ending governmental measures that create obstacles to easy access

The NAS report further explains that this is everyone’s responsibility to manage their hearing health: Cross-sector, sustained collaboration is crucial to successful implementation of the report’s blueprint.

"Hearing Health Foundation (HHF) recommends everyone talk to their doctors to identify any hearing loss as well as to find the best hearing loss treatment for them. HHF is dedicated to funding research to cure and treat hearing loss and tinnitus  and is proud to play a role in pushing hearing and balance research forward,” says Nadine Dehgan, HHF CEO.

HHF would like to thank the NAS and its expert committee for their hard work in preparing this report, including the committee’s Judy R. Dubno, Ph.D., a member of HHF’s Board of Directors, and Debara L. Tucci, M.D., a member of HHF’s Council of Scientific Trustees

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HHF's FY'15 Annual Report: Read It Now

By Morgan Leppla

Hearing Health Foundation (HHF) is pleased to announce that our 2015 annual report is now available. From the latest hearing research to how we have worked to fulfill our mission, the report is a comprehensive look at our programs, events, and activities for fiscal year 2015 (Oct 1, 2014 - Sept 30, 2015).

In the report, we review HHF’s progress, talk to supporters, and decode the financials. Here are some highlights:

  • Check out the incredible supporters who ran, hiked, and hosted events all to benefit HHF’s mission!

  • HHF’s Hearing Restoration Project (HRP) consortium of researchers made notable strides in hearing and tinnitus research. In 2015, the HRP designed a model to test candidate hair cells for regeneration in deafened adult mice, and that’s only a fraction of the story.

    • HRP researchers like Andy Groves, Ph.D., thank you. “Federal funding for biomedical research has decreased by over 20% since 2003, and it shows no sign of increasing any time soon. Your support is critical to help support the skilled young scientists in my lab and to keep the lab afloat,” he says.

  • HHF awarded ten Emerging Research Grants (ERGs) to innovative scientists in the areas of Central Auditory Processing Disorder (CAPD), Hyperacusis, Ménière’s Disease, and Tinnitus. Learn more about what they are doing with their research grants.

  • See if your name made the donor list. Didn’t see your name...make a gift by Sept 30, 2016, to be listed in fiscal year 2016’s annual report.

  • Keep your eye (or ear!) out for hearing-related facts and statistics.

Get all the details in the full report here. We are excited by our progress over the past year and hope you enjoy reading it. As always, have any questions, please email us at info@hhf.org!

Please consider making a gift today so we can continue to carry out our mission and find a cure for hearing loss and tinnitus.

YOU ARE OUR HOPE.

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HHF Achieves Accreditation From BBB Wise Giving Alliance

By Morgan Leppla

Accountable, transparent, responsive, and enterprising. 

It takes a resolute organization to embody these traits. While we believe that has been the case since Hearing Health Foundation’s inception in 1958, we now have Better Business Bureau Wise Giving Alliance (BBB WGA) accreditation to prove it!

The BBB WGA evaluates charities based off of 20 holistic standards that include scrutinizing financial transparency and planning, internal governance, effectiveness measurements, and fundraising disclosure practices and accuracy. Check out our profile at Give.org today!

We also recently received a Platinum rating from Guidestar, which is the highest rating available. This rating signifies that HHF yields measurable results using self-defined metrics that reveal much more than oversimplified financial ratios.

But why should this matter to you?

Because these 3rd party ratings show we achieve our mission, responsibly!  

“The public can be assured that every charity evaluation is completed with careful, objective analysis of charity information,” says Art Taylor, president and CEO of the BBB Wise Giving Alliance. “

The more we become deserving of your trust, the better the prospects for curing and preventing hearing loss and tinnitus. More than 80 cents of every dollar goes to funding programs and research, meaning we have the capacity to to enact the changes we promise.

While the BBB seal of approval verifies the standards of our operating procedures described above, our commitment to quality is motivated by a much greater force. It is traceable to our mission and core values, which structure the ways we act and choices we make. Accountability to our constituents and stakeholders is crucial to upstanding practices, and without it we would not be HHF. 

Please consider making a gift today so we can continue to carry out our mission and find a cure for hearing loss and tinnitus. 

YOU ARE OUR HOPE.

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My Hearing Loss Journey

By Meghan Bayer

August 12th, 1996, I came screaming into the world. I had all my fingers and toes and my parents could not have been more proud of their “perfect” baby girl. I was (and still am) blessed by having two very loving parents,  and just over two years after my parents had me, they gave me the extraordinary gift of being a big sister.

Meghan (on right) with her dad and brother

Meghan (on right) with her dad and brother

As I went through my toddler years, I hit all my developmental milestones. Around the age of three and a half, my parents started noticing that I was always turning my right ear to the person speaking. Something wasn’t right. I was not reacting to sounds the way the typical hearing child should. My parents took me to my pediatrician who referred us to an audiologist. On September 28th, 2000, at the age of four, I was diagnosed with bilateral moderate-severe sensorineural hearing loss and immediately fitted with hearing aids. My dad and brother also have congenital hearing loss and wear hearing aids.

When I was first diagnosed, my parents’ worlds’ were shattered. My dad continued to be in denial and all my mom could do was hold me and cry. I think they felt I would somehow be limited in by abilities. As a way to recover and accept the diagnosis, we started taking family sign language classes which we all enjoyed.

My whole education, I have been mainstreamed in a private school. I had a very typical childhood; my mom drove me to soccer, dance, gymnastics… you name a sport and I have probably at least tried it. My days were filled with homework, playing outside, and evening swimming lessons. I was a well-behaved student that had earned the respect of all of the teachers, faculty, and staff. I maintained straight-A’s and regularly made the honor roll. At school, I had a hearing support teacher come in for a half hour twice a week during school hours to troubleshoot my equipment, review math skills, and occasionally play fun games.

In 5th grade, my family moved two hours away for my parents’ jobs. I didn’t know anyone and I was very shy. If someone asked me about “those things on my ears” I would stare at the floor silently.

Everything was different. I had a locker now, a bunch of teachers that didn’t fully understand my needs, and a new hearing support teacher. I lived in a new city and making friends seemed like an impossible task. I had to deal with my first real bully who would he call me names and physically abuse me.  When I defended myself from getting hit by a hockey stick, I got detention.

Through the years, my hearing became progressively worse until I was profoundly deaf in my left ear and so I was implanted with bilateral cochlear implants during the summer of 2010.  With intense therapy, I successfully learned to hear. I was constantly amazed at my new hearing world. With the increased ability to hear, my academic success improved dramatically and my confidence soared. I received my second implant just days before starting my freshman year of high school.

In order to fulfill my school’s foreign language requirement, they offered to let me take ASL. I politely declined and stated that I would be taking French. I was at or near the top of my class all four years of French. My sophomore year, I was given the French II Award for the highest academic average in my class. This goes to show that if you work hard, anything can happen!

Hanging out with friends, homework, community service and year-round basketball ruled my life. I was inducted into the National Honor Society, served as the president of the school’s service club, and enjoyed helping out with school events. By my senior year, I had over 800 service hours and I was awarded my high school’s highest honor for my scholarship, character, and service. I graduated with highest honors, a varsity basketball letterman, and as a member of the National Honor Society.

 

Today, I can confidently tell you that hearing loss will never be an excuse for me or any of my family members. My present goal is to earn my degree in Communication Rhetoric, minor in the Administration of Justice, and obtain a certificate in National Preparedness and Emergency Management. It sounds like a lot, but I’ll get it done because there are no excuses!  While I am by no means fluent, I do attend our ASL club on campus and continue taking classes.

Looking back on the journey, I am thankful that my speech was completely unaffected by my severe inability to hear during the prelingual period. I am grateful to my parents and I would not be where I am today without the help of each and every single person on my journey.

SHARE YOUR STORY
Want to share your hearing loss story with our community? If so, email us at info@hhf.org

We hope to hear from you soon! 

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Take the National Hearing Test This Month - for Free!

By Charles S. Watson, Ph.D.

All this month, Duracell is sponsoring the National Hearing Test (NHT), in honor of May as Better Hearing and Speech Month. John Slattery of “Mad Men” is a spokesperson for the campaign and stars in a new Duracell commercial to raise awareness about hearing loss and the benefits of hearing aids.

The test can be taken without charge for the rest of the month, by dialing 1-844-9-DURACELL (1-844-938-7223).

The NHT is a U.S. version of the telephone-administered tests first introduced in the Netherlands in 2004 and now in use in most European countries and Australia. It measures the signal-to-noise-ratio required to identify spoken three-digit sequences in noise. Its validity was established by comparisons with pure-tone average thresholds used in traditional audiograms.

The not-for-profit screening requires about four minutes for each ear and the results are given at the end of the test as “within normal limits,” “slightly below normal limits,” or “substantially below normal limits.” Callers that fall below "normal limits" are advised to see an audiologist or a physician specializing in hearing for a complete evaluation. All callers with concerns about their hearing are similarly advised.

The test, usually $5, was offered for free during Better Hearing and Speech Month in May 2014, when it was publicized in health/science articles in several newspapers, including the Washington Post, St. Louis Post Dispatch, and the Indianapolis Star, estimated to reach 2 to 5 percent of the American population.

The 2014 data shows how we may expect the test to work this year: Over 40,000 calls were made to the test, the majority of which (32,000) were complete tests of both ears. Among the completed tests, 81 percent failed the test in at least one ear; their average age was 62.4 years, suggesting that the target audience was reached.  
Follow-up studies revealed that about 38 percent of those failing the test subsequently sought a full hearing evaluation, or planned to do so in the future.  Of those advised to purchase hearing aids after the full-hearing evaluation, 28 percent said they had done so or intended to. 

Recent studies of decision-making in relation to other health problems as well as hearing loss suggest that decision-making is a multistage process that may require many months or even years to lead to action.

So, while failing a screening test may not always lead to immediate self-referral and the purchase of hearing aids, it may significantly reduce the delay in so doing from the typical 8 to 10 years from hearing loss diagnosis to purchase of hearing aids to perhaps as few as 1 to 3 years.

The remarkable response to the NHT when it was offered as a simple, private transaction shows there to be a great many persons with hearing loss who would take a valid, convenient, and private screening test if one were available. We are hopeful that the current month’s well-publicized availability of such screening tests will effect a major change in the public’s understanding of hearing loss and actions to treat it.

Charles S. Watson, Ph.D., is a professor of speech and hearing sciences at Indiana University and co-founder of Communication Disorders Technology Inc., which developed the National Hearing Test in collaboration with Indiana University, and the VU University Medical Center of Amsterdam, with the support of grants from the National Institute of Deafness and Other Communication Disorders.

References

  • Donahue, A., Dubno, J. R., and Beck, L. (2010) Accessible and affordable hearing health care for adults with mild to moderate hearing loss. Ear and Hear, 31, 2–6.

  • Laplante-Lévesque, A., Brännström, J., Ingo, E., Andersson, G., and Lunner, T. (2015) Stages of Change in Adults Who Have Failed an Online Hearing Screening, Ear and Hear 36, 92-101.

  • Smits C., Kapteyn T.S., Houtgast T. (2004) Development and validation of an automatic speech-in-noise screening test by telephone. Int J Audiol 43(1), 15–28.

  • Watson, C. S., Kidd, G. R., Miller, J. D., et al. (2012). Telephone screening tests for functionally impaired hearing: Current use in seven countries and development of a US version. J Am Acad Audiol, 23, 757–767.

  • Williams-Sanchez, V., McArdle, R.A., Wilson, R.H., Kidd, G.R., Watson, C.S., Bourne, A.L. (2014) Validation of a Screening Test of Auditory Function Using the Telephone. J Am Acad Audiol, 18, 151-183.

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Sounds like Meniere's Disease

By Haley Walker

Haley getting hearing aid mold impressions

Haley getting hearing aid mold impressions

“Looks like you have Ménière’s disease,” my doctor said. My heart skipped a beat. What does that mean? What on earth is that? Over the next couple of months I had various hearing tests done, and met with an ear, nose, and throat doctor. It was a lot to take in.

At first I was just glad to have an answer to my problems. A name, a label, an explanation—and to know I am not going crazy. But after that I began to feel worried. Ultimately my diagnosis meant progressive hearing loss; not only did I need hearing aids for moderate hearing loss, my hearing could get worse.

Ménière’s also means I have to follow a low-salt diet. I can’t eat more than 1.5 grams a day of sodium. That’s about a third of a teaspoon. No fast food, no processed food, no added salt.

Ménière’s disease is a disorder that causes abnormal fluid retention in the inner ear, leading to balance problems, hearing loss, and tinnitus (ringing in the ears). Typically, it only affects one ear but lucky me—I have it in both. My doctor was very surprised and said it's quite rare, but as I researched the condition I found a lot of people have it in both ears. That made me feel a bit better.

The truth is it took over a year to finally get this diagnosis of Ménière’s. If I really think about it, I started having disabling dizzy spells that caused vomiting and nausea when I was in high school, at age 16 or 17. (I am 20 now.) My family and I wrote them off as anxiety attacks and dealt with them as they came.

I remember trying to walk home up a hill behind the school one day and literally falling on my face because I couldn’t walk straight. Mmmmm dirt… yummy. I stumbled home and laid down on the floor in our living room crying. I couldn’t get a grip on myself. What is happening to me? Anxiety definitely played a part, but I now know there was a more pieces to the puzzle.

I am now treating Ménière’s by following my low-sodium diet, wearing my hearing aids, and taking a diuretic—a medication that helps to control the abnormal fluid retention in my ears. (This is why limiting salt also helps—salt makes you retain water.) It was incredible when I first got my hearing aids. Everything I had been missing I could suddenly hear! I now can enjoy the little things like the birds singing outside my window in the morning. When the tinnitus gets really bad I put on background white noise, like the sound of the ocean or rain falling. And when the dizzy spells hit, I do the only thing I really can, sit or lay down, and close my eyes waiting for it to pass.

Haley and her hearing aid

Haley and her hearing aid

If you or someone you love has been diagnosed with Ménière’s, don’t worry—it's not the end of the world! You learn to cope and manage your flare-ups, and hearing aids are amazing. I cried tears of joy the first time I listened to music after I got them.

The important thing to remember is that you aren’t alone! There are others out there with Ménière’s. Join a group on Facebook or start your own. Talking to others who understand what it's like and what you are going through helps so much. Look at celebrities, like Katie Leclerc, who are dealing with it every day and rocking it.

And lastly, take care of yourself. On bad days, pace yourself and do what you need to do to feel better. Always remember, “This too shall pass.”

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IT HAPPENED TO ME: I'm 27 and I Just Got Hearing Aids

By Sarah Klegman

As un-cool as they may be at times, and even though my hearing loss isn’t as bad as most, hearing aids have changed my life.

After an adverse reaction to medication left me with Tinnitus (a constant ringing in your ears, it’s lovely), I was put through a series of hearing tests. I sat in a vault-like room listening for beeps of varying volume. Afterward, they told me that I had high frequency hearing loss, and I’d be a great candidate for hearing aids.

Urm, no, I do not need those.

Big, clunky, ugly pieces of wannabe skin-color machinery, shoved into wax-filled hairy old-man-ears... I don’t need them. It’s just that I have to read lips in loud places and my close friends know to stand on my left side because my right ear is worse than my left and sometimes I miss important things in meetings and on phone calls.

Ooooooh.

I walk into the hearing aid place my insurance company recommended (but doesn’t cover). The audiologist brings me into his office and runs through what feels like his usual spiel. After tapping his fingers on the keyboard for a minute, he hands me a pair of ear buds that are wired to his computer.

“You’ll hear static for a moment before they turn on.”

I put them in, and hear the static like he says. Then the static stops, and suddenly, there are… sounds.

Everywhere. Everything has a sound. It’s like I can see the space around me, but with my ears. I hear the hum of his computer, the sound of his pants on his office chair as he shifts his position to look closer at the screen.

He picks up a piece of paper and I hear it. I hear a piece of paper. It crinkles and as his fingers move across it, I can hear the texture.

My eyes start uncontrollably watering as I realize how much I have to experience and hear. I shuffle my feet on the floor, taking so much joy in hearing the synthetic threads against my shoes. I kick my purse with my foot and hear everything inside move. It's like a drug, and I am greedy for it.

He tells me that I can take them off… but I stall, asking him questions so I can keep them in a bit longer.

“Where are these manufactured? How long have you been an audiologist? Have you ever been to the restaurant next door?”

We go over pricing (average being $4k+) and I leave his office seeking out a second opinion.

I did some Googling and landed on the website of Dr. Stephen Kirsch, an audiologist just up the street. His website said that he and his wife spend time outfitting children in Africa with hearing aids. Um, yes. I like him already. I call and make an appointment.

He welcomes me into his office and I’m feeling anxious, but trying to play it cool, wondering when I’ll get to put hearing aids in my ears again. We start talking about my hearing loss, and then he asks me if I want to try some out. “YES, YES I DO.”

His aren’t wired to a computer like the other guy’s. They’re just regular hearing aids, and they’re TINY. Like, I could accidentally swallow them in a salad and not notice, tiny.

He helps me put them in, and my eyes widen, searching the room for something new to hear.

“They’re not on yet,” he tells me. “Oh,” I sheepishly respond.

Just like the other guy, he tells me I’ll hear static for a minute while he adjusts things. Then, like before, my ears switch on. I light up, and this time, so does the other person in the room. He taps his fingers on his desk; he picks up a piece of paper and shakes it around, indulging my greediness for sound.

He tells me some things to expect. How I’ll get used to hearing my own voice, it might be overwhelming in loud places, and… I’ll be able to accurately represent myself. I hadn’t thought of that last one, and I didn’t fully understand it at the time, but I would come to.

He lets me take a pair to test drive. I get in my car, smiling like an excited dog following new smells and I turn on some music. A Mumford and Sons song comes on and I have what can only be described as an eargasm. The violin. I can hear the violin! I didn’t even know there was a violin in this song!

I have high frequency hearing loss, so the higher pitch the sound, the less I can hear it. Harmonies became richer. I could hear the strings of the guitar. The fibers. Then some less exciting realizations came to me – like how those whispered conversations probably weren’t that quiet, my laugh really is that loud, and those toots may not have been silent.

Oops.

When I was younger, doctors said that I had premature hearing loss, but that sentence was never finished with, “and hearing aids could make a significant improvement on your life.” 

So, my family and friends continued thinking of me as a “bad listener.” Which, I guess, technically, I was -- but being called a bad listener hit me in the heart. To me, they were calling me self-absorbed and disinterested.

I know I’m not perfect, but most of the time I was trying. However, just straining to hear someone can come off as unwelcoming. Your face scrunches up, your eyebrows furrow, and your neck cranes out -- body language that reads negatively. So, after a while, I stopped asking people to repeat themselves as often.

“What? Oh… you already repeated it twice, and if I ask once more, you’ll scream-repeat it at me angrily? Oh, um, yeah, no, I totally heard you.”

I asked Dr. Kirsch if I could pick his brain for this article and he enthusiastically agreed. While chatting, I told him about being called a bad listener. He paused, looked me in the eye and said, “But you’re a great listener.” My heart swelled. 

He continued, “You are a great listener largely because you and others with hearing loss pay such close attention to body language and facial expressions which tell more than the words on their own.”

He told me about a lawyer he worked with. The lawyer worried that if people noticed his hearing aids in the courtroom, it would be perceived as a sign of weakness and inspire doubt. 

Unfortunately, because of all the stigma, a lot of people who could use hearing aids don’t get them. As few as 1 in 5 people who have hearing loss actually do something about it.

My first week with hearing aids, I wore them to a beach house with some friends. They were all very happy for me, but I kept hearing this static. Something must be wrong with the hearing aids, I thought.

“There! Did anyone hear that?!”

Nope.

“That?!”

Nope.

Then my friend Sally goes, “Wait a second. Do you hear it right… now?”

“Yes!”

Another moment passes, “And… now?”

“Yes!!”

“Sarah,” she says, “those are waves. You’re hearing the ocean.”

Later, I had a meeting with this guy. I had my hearing aids turned up so I wouldn’t miss anything, so they were even more susceptible to feedback. I hugged him goodbye, his ear covered mine, and my hearing aid made a high-pitched noise (like when a microphone gets in front of a speaker). The guy pulled back and looked at me weird.

“Oh, could you hear that, too?” I asked.

“Yeah, what was it?”

I said, “I – AM – A – ROBOT,” and did the robot.

I thought it was hilarious.

During our chat, I jokingly ask Dr. Kirsch when I should tell a date that I have hearing aids. He sweetly says that I should tell them around the time we start to really care for each other. That’s great advice. 

More likely, I’ll end up stalling until a moment of natural clumsiness occurs, wherein my hearing aids will either fall out, or start blasting audible feedback. Ta-da! 

As un-cool as they may be at times, and even though my hearing loss isn’t as bad as most, hearing aids have changed my life. I believe that shamelessly showing your vulnerabilities can make you an even more likable person. Living honestly inspires others to live honestly.

That’s what Dr. Kirsch meant about being your authentic self. “You can't fully communicate who you are when you can't hear what people are saying to you. People won't listen if they feel like they aren't being heard.”

You strain to hear someone speak, you miss important words -- and as entertaining your shriek may be at the time -- you’re startled when you didn’t hear a friend walk in the room. You’re always on edge.

I hope this reaches people with hearing loss (I’m looking at you, dear friend in denial) and helps them in getting over the stigma and their hang-ups about looking old or handicapped; getting hearing aids can significantly improve your quality of life and how you communicate with the world. It also makes life a bit easier on your family and friends, too. 

Now, when I forget “my ears,” my friends notice. I’ll ask “What?” and they’ll say with a loving/scolding tone, “Are your ears in?”

Originally published on xoJane and republished here with their permission.

Receive updates on life-changing hearing research and resources by subscribing to HHF's free quarterly magazine and e-newsletter.

 
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How To Clean Your Ears Without Damaging Them So Your Hearing Stays Intact

By Lindsey Rose Black

Unlike washing your face or hair everyday, ears can be easy to forget about until they’re pretty waxy. If you’re officially at a point where your ears require a serious deep clean, read on for how to clean your ears without damaging them because it can be tricky! There’s no reason to worry, but you do want to be careful.


First and foremost, if you are still using cotton swabs to clean your ears, back away right now. The American Academy of Otolaryngology (ears, nose, and throat), released a statement that said, "Wax blockage is one of the most common causes of hearing loss. This is often caused by attempts to clean the ear with cotton swabs. Most cleaning attempts merely push the wax deeper into the ear canal, causing a blockage." Yeah that's right, cotton swabs could actually cause hearing loss. No freaking thank you!


As for how often to clean, Douglas Backous, M.D. told Huffington Post, "Ears really only need to be cleaned ... if they feel full or you notice changes to your hearing that could be related to waxy buildup." If these symptoms sound familiar, below are two of the safest and easiest ways to clean your ears at home. Of course, if things become painful, definitely go ahead and seek out a professional doctor.

  1. Wash Cloth Rub

    As shared in PopSugar, you can safely clean your outer ear by simply wetting a wash cloth with water (no soap!) and then gently rubbing around your ear. Don't try to reach in too far, though.

  2. Hydrogen PeroxideAnd Water Rinse

    Another safe and effective method is mixing together equal parts water and hydrogen peroxide, and using a rubber bulb syringe (yes, like a turkey baster) to pour a bit of the mixture into your ear. Wait a few seconds, then flip your head over for the excess liquid to drain out.

  3. Rubbing Alcohol And White Vinegar

    If you don't have hydrogen peroxide on hand, you can also safely mix rubbing alcohol and white vinegar together and follow the above instructions.

 Originally published on Bustle and republished here with their permission. Images: Abigail Keenan/Unsplash; Courtesy of Brands

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Support HHF This Mother's Day

By Heather Friedman

Laura (second from left) with her sister in-law Liza, her maternal Grandmother and Aunt, with Heather on the far right.

Laura (second from left) with her sister in-law Liza, her maternal Grandmother and Aunt, with Heather on the far right.

For three and a half years my daughter, Laura, attempted to hear and to be understood. As her mother, I struggled to make sense of her difficulties—which I knew in my heart did not stem from developmental or attention deficit disorders.

Prior to her diagnoses at three and a half, Laura had a very difficult time communicating. I took her to specialists and started her on speech therapy, with little result. When Laura was finally diagnosed and fitted with hearing aids, things began to fall into place.

When Laura finally received the correct diagnosis—hearing loss—I was relieved. Parents and children should not have to wait over three years to have this condition detected, struggling all the while with delays hampering social and emotional growth. Parents should not have to go through the pain of knowing something is holding their baby back, when it could be so easily detected.

In 1993, four years after Laura was born, Hearing Health Foundation’s steadfast advocacy work led to the passing of Universal Newborn Hearing Screening Legislation. As a result—today, 97% of American babies are tested for hearing loss at birth. This means newborns with hearing loss can immediately get the help they need through technology such as hearing aids and cochlear implants, as well as speech and language therapy. This means an easier life, from birth, for children with hearing loss.

Today, I am proud to say that Laura is a happy and successful adult. In fact, she is such a staunch champion for people with hearing loss that when a job became available at Hearing Health Foundation, she jumped at the chance to work there! As Hearing Health Foundation’s Communications and Programs Manager, Laura works hard to advocate for those with hearing loss, to prevent hearing loss, and most importantly to raise funds to research for a cure.

It is my hope that she can one day benefit from her tireless efforts. Your support can make my dream for her, and other people living with hearing loss, a reality. A gift to this amazing organization is a gift to all people with hearing loss, as well as to their families!

This Mother's Day, Hearing Health Foundation would like to shine a light on all Mothers for all they do for their children and families.

Please consider giving a gift in Honor or in Memory of a wonderful Mother you know. Your gift will be used to fund groundbreaking research to prevent and cure Hearing Loss and Tinnitus and to promote hearing health.

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Walk, Block, and Turn!

By Maggie Niu

April 27 is International Noise Awareness Day (INAD), a day dedicated to encouraging people to “do something about bothersome noise where they work, live, and play.”

Every day in our environment we experience sound, whether it’s pleasant, like music, or bothersome, like sirens. Unpleasant or unwanted noisy environments can be dreadful; not only can noise increase our stress level and inhibit us from carrying out daily tasks, but also in the long run overexposure to noise can damage our hearing. This is known as noise-induced hearing loss (NIHL). All too often, we become immune to the constant hum of traffic (about 85 decibels, or dB) and noisy subway stations (95 dB). The Safe and Sound safe listening levels chart, on the left, details the effects of various decibel levels on our ears.

There are two causes of NIHL. One is impulse noise, a one-time exposure to a loud sound such as an explosion. This can cause temporary and/or permanent hearing loss. The other cause of NIHL is continuous exposure to loud noise. This type of hearing loss happens gradually over time.

NIHL affects our inner-ear hair cells (the cells that help us hear) as well as the auditory or hearing nerve. Not only can this type of hearing loss be permanent, it can also lead to tinnitus. Tinnitus is hearing a constant ringing, buzzing, or roaring without an external sound source. It can be in one or both ears and often occurs with hearing loss.

 

Now the question is: How do we protect ourselves from NIHL? It can be as easy as remembering to Walk, Block, and Turn! Walk away from loud sounds. Block noise by wearing earplugs or other hearing protective devices. Turn the volume down on stereos and personal music devices. If you work in a noisy environment, take proper measures to protect your ears by wearing ear plugs or ear muffs. Being able to hear is important for daily interactions and often taken for granted until it's too late.

To learn more about Hearing Health Foundation's Safe and Sound program, please email development@hhf.org.

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