News & Events

Security Updates to HHF Donation Page: Action Required

By Lauren McGrath

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Hearing Health Foundation (HHF) is committed to maintaining transparency with our constituents. In addition to our pledge that all contributions are well-invested—100% of all donations benefit our critical research and awareness programs—HHF promises to uphold data security best practices with online gifts.

We request that you make two simple updates to you ensure you can donate to HHF online in the future. Follow the links included here for guidance making the changes:

  1. Update your operating system (OS) on your Apple or Windows computer to the most up-to-date version.

  2. Update your internet browser to the most up-to-date version.

Our online giving page will be inaccessible to users who do not complete these changes by March 15, 2018.

The updates are required because today's industry standard security features are no longer compatible with older systems. Ensuring that your OS and internet browser are fully up-to-date is the best way to protect your donation and guarantee it is processed safely. This is an industry-wide requirement to ensure the highest level of security when processing all financial transactions.

Please contact us at info@hhf.org if you require assistance making these changes or have any questions about the security of our donation platform.

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San Diego Tunes In to Hearing Health

By Jordan Conole

On February 11th, Hearing Health Foundation (HHF), the nation’s largest nonprofit funder of hearing and balance research, hosted a public seminar on hearing health and hearing loss in at the Central Library in Downtown San Diego.

Guests mingle before the start of presentations on hearing loss research and treatments in the Shiley Special Events Suite of the San Diego Central Library.

Guests mingle before the start of presentations on hearing loss research and treatments in the Shiley Special Events Suite of the San Diego Central Library.

Event attendees included members of the public, scientists and researchers, many of whom have devoted their careers to finding a cure for hearing loss.

Ronna Hertzano, M.D., Ph.D., a surgeon at the University of Maryland Medical Center, spoke about the need for change in the way we treat hearing loss, noting, “Just as a doctor would now take a patient with elevated or slightly higher blood pressure seriously, we must do just the same with hearing.” Dr. Hertzano claimed that those who experience hearing loss oftentimes can suffer from loneliness and feelings of isolation.

According to a recent study by the National Aging Committee, more than 11% of those with some form of hearing loss suffer from depression compared to only 5% of the general public.

Dr. Harrison Lin, a scientist funded by HHF’s Emerging Research Grants program, and colleagues discovered that of the 48 million Americans who report experiencing some form of hearing loss, only about one-third of those actually seek out treatment.

Ken Knoblett, a San Diego resident who counts himself as part of that third, noticed a drastic change in his interactions with friends and family once he began to use hearing aids. “I was immediately able to be more connected to my friends and family and enjoy gatherings again. The hearing aid and treatment really changed my life for the better!”

Based on the strong connection to hearing loss and its strong emotional side effects, testing for hearing loss and treating it is the best way to combat and prevent its underlying side effects.

Hearing loss is an isolating condition for hundreds of thousands of Americans, but the scientists working for HHF hope to someday end that isolation.

Jordan Conole is a freelance journalist who covers San Diego local nonprofits and charity events in the surrounding areas. 

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HHF’s Fiscal Practices Endorsed by Consumer Reports for Second Consecutive Year

By Nadine Dehgan

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Source: Getty Images

Source: Getty Images

Hearing Health Foundation (HHF), the largest nonprofit funder of hearing and balance research, is thrilled to be recognized by Consumer Reports as one of the “Best Charities for Your Donations” for the second consecutive year.

Consumer Reports’ prominent charity roster, released annually to facilitate informed giving, includes 11 categories ranging from Animal Welfare to Youth Development. HHF is acknowledged as a top-rated nonprofit in the Blind and Hearing-Impaired category, and the only organization listed whose mission is to better the lives of those with hearing loss.

The “Best Charities for Your Donations” are determined using metrics from three major charity watchdogs: BBB Wise Giving Alliance, Charity Navigator, and Charity Watch. These watchdogs independently research charities’ financial histories and moral standards to evaluate how donors’ contributions are used. Each of them have previously highlighted HHF for its excellence in fundraising, governance, effectiveness, and financial standards.

HHF’s superior charity ratings and our placement on the Consumer Reports list illustrate how we pursue our mission in a financially responsible way. These accolades differentiate HHF from its peers and assure donors we are worthy of their trust.

HHF exists to better the lives of those with hearing loss by funding life-changing research and through our awareness and education programs. Our endorsements from Consumer Reports and charity watchdogs show our commitment to our mission. We have achieved many scientific milestones in our 60 years, but more work is needed. We are grateful to those who give their time and financial resources in pursuit of better treatments and cures for hearing and balance conditions.

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HHF Celebrates 60 Years

By Yishane Lee

The legacies of Collette Ramsey Baker and Wesley H. Bradley, M.D., underscore the shared mission of Hearing Health Foundation and the medical community to support and fund groundbreaking scientific research.

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Sixty years ago, Collette Ramsey Baker founded Deafness Research Foundation, now known
as Hearing Health Foundation (HHF). After living with a hearing loss for decades, she found relief through fenestration surgery, an early otosclerosis treatment. In gratitude, Ramsey Baker wanted to give back. Her daughter, Collette Wynn, says, “My mother made a promise that, if the operation worked, she would do something to support research to find the causes of deafness and develop better treatments.” HHF was launched in 1958.

Ramsey Baker introduced her surgeon, Julius Lempert, M.D., who pioneered the fenestration surgery, and Walter Petryshyn, M.D., her otolaryngologist (ear, nose, and throat specialist), to finance and industry leaders, and from this talented group came HHF’s first Board of Directors, with Ramsey Baker becoming HHF’s president.

In 2006, this magazine ran a profile of Ramsey Baker featuring the recollections of HHF’s early years from Wesley H. Bradley, M.D., a skilled surgeon who went on to lead what became the National Institute on Deafness and Other Communication Disorders (NIDCD). Bradley passed away in 2012, two years after Ramsey Baker.

In the article, Bradley recounts how HHF’s mission so impressed Lempert that he spoke about the organization to leading otologists. “These individuals quickly saw the advantage of supporting a group that was firmly established to promote otological research,” Bradley said.

One early effort was the creation, in 1960, of a program to encourage people to donate their temporal bones to hearing science upon death. The National Temporal Bone Registry, now
overseen by the NIDCD, has led to countless research breakthroughs.

In 1963, physician support of HHF was formalized with the creation of The Centurions, a group of doctors who covered HHF’s administrative costs so all funds raised went directly to hearing research. Physicians also joined the board and launched the Emerging Research Grants program, which remains HHF’s flagship along with the Hearing Restoration Project research consortium.

Bradley’s three-decade involvement with HHF, including as a founding Centurions member and medical director, was recognized with the Wesley H. Bradley, M.D., Memorial Grant, awarded to a promising ERG scientist in 2014. “I had the idea of honoring Wes’s work,” says Bradley’s wife, Barbara. “The many years he spent working at Deafness Research Foundation, it really was a labor of love. He believed very strongly in its mission.”

Says Elizabeth Keithley, Ph.D., the chair of HHF’s Board of Directors, “Planned giving is a major component of HHF’s success today and into the future. It is with these achievements and many more in mind that we celebrate 60 years and look toward more groundbreaking discoveries in hearing and balance science.”

Yishane Lee is the Editor of Hearing Health magazine, a quarterly publication of HHF. This article originally appeared in the Winter 2018 issue of Hearing Health magazine. Read more about Bradley in “A Family Gift” in the Fall 2014 issue and “A Tribute to Wesley H. Bradley, M.D.” in the Winter 2013 issue.

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You’re Invited: Comprehensive Hearing Health Experience in February 2018

By Lauren McGrath

In honor of our 60th anniversary, Hearing Health Foundation (HHF)’s Board Chair, Elizabeth Keithley, Ph.D., is hosting Hearing360—an educational and social forum at the San Diego Central Library—in early 2018. Hearing360 seeks to engage HHF’s San Diego area constituents with the latest updates in hearing research and everyday guidance for hearing health.

Featured event speakers include scientists Ronna Hertzano, M.D. and Andy Groves, Ph.D. from HHF’s Hearing Restoration Project (HRP), the world’s first international consortium dedicated to identifying a permanent biological cure for hearing loss. Their individual presentations on the regeneration of hair cells in the inner ear will be followed by a brief Q&A session.

Ronna Hertzano, M.D.

Ronna Hertzano, M.D.

Andy Groves, Ph.D.

Andy Groves, Ph.D.

Hearing360 will also honor the generosity of longtime HHF supporters Frank and Chris De Francesco, who shared their experiences raising a child with profound hearing loss in “Why We Believe in Hearing Health Foundation,” which appeared in the Fall 2017 issue of Hearing Health magazine.

Scheduled for Sunday, February 11 from 3:00 - 5:00 PM in the San Diego Central Library’s Shiley Special Event Suite, Hearing360 will be fully accessible with a t-coil loop system and open captioning. Light refreshments and wine will be available.

Limited space is available and an RSVP is required for all guests. We look forward to meeting you in San Diego. Please contact HHF at events@hhf.org with any questions regarding Hearing360.

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Universal Newborn Hearing Screening to Prevail Under EHDI Act of 2017

By Nadine Dehgan

Federal funding for universal newborn hearing screening will prevail until 2022 under the The Early Hearing Detection and Intervention (EHDI) Act of 2017, which officially became law last month. Hearing Health Foundation (HHF) is ecstatic that there was bipartisan support for critical early testing and intervention for children with hearing loss.

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Introduced in March by Representatives Brett Guthrie (R-KY) and Doris Matsui (D-CA) as an amendment to the Public Health Service Act, the EHDI calls for early detection, diagnosis, and treatment of deaf and hard-of-hearing newborns, infants, and young children. Each day nationwide, 33 newborn babies—approximately three out of every 1,000 births—are diagnosed with hearing loss, making it the most common congenital birth defect. Left undetected, hearing loss can negatively impact a child’s speech and language acquisition, academic achievement, and social and emotional development.

HHF, a long-time supporter of universal hearing screening for newborns, applauds the enactment. HHF was instrumental in highlighting the need for similar legislation in the 1990s. In 1993, only 5% of newborns were tested at birth for hearing loss. By 1997, 94% were tested before leaving the hospital, and today 97% of babies are screened before they leave the hospital.

Earlier drafts of the federal budget put the coverage of these crucial procedures at risk, prompting legislators in both the Republican and Democratic Parties to take action quickly. In addition to the bill in the House, a companion measure was introduced in the Senate by Senators Rob Portman (R-OH) and Tim Kaine (D-VA). In early October, the House passed the Act following the Senate’s unanimous approval in September.

“This program exemplifies the importance of early detection and intervention,” said Congresswoman Matsui. “By ensuring that infants have access to hearing screenings at birth, parents can make informed choices about their care management early on. This is critically important, given that so much of a child’s development happens in the first few years of their life. I’m pleased that through the passage of this legislation, the newborn screening and intervention program can continue to improve health outcomes for kids.”

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HHF Attends Cantor Fitzgerald’s Charity Day, a Star-Spangled Effort to Build Hope on Tragic 9/11 Anniversary

By Yvonnie Phan

Hearing Health Foundation (HHF) was among the dozens of charities selected to participate in yesterday’s Cantor Charity Day—an annual, celebrity-filled philanthropic event held around the anniversary of September 11—at Cantor Fitzgerald’s New York City headquarters.

From left: HHF Board Vice Chair Paul Orlin, Cantor Fitzgerald Relief Fund President Edie Lutnick, Former Hockey Star Martin St. Louis, HHF CEO Nadine Dehgan

From left: HHF Board Vice Chair Paul Orlin, Cantor Fitzgerald Relief Fund President Edie Lutnick, Former Hockey Star Martin St. Louis, HHF CEO Nadine Dehgan

HHF’s attendance marked the organization’s fifth year of participation. HHF was represented by Hockey Legend Martin “Marty” St. Louis, HHF Board member Paul Orlin, and Nadine Dehgan, HHF’s CEO.

As Marty’s own foundation has supported HHF’s life-changing hearing and balance research in the past, HHF was especially thankful that he also dedicated his time to serve as an ambassador.

Marty St. Louis and Robert De Niro

Marty St. Louis and Robert De Niro

The HHF trio had a particularly memorable encounter with Robert De Niro and another hockey star, Mike Richter, who were also among Charity Day’s celebrity roster. Marty told Mr. De Niro that in his days as a player (for Tampa Bay Lighting, Calgary Flames, and the New York Rangers), he impersonated De Niro’s film roles in the locker room to energize his teammates before big games—and the movie star found that amusing.

All proceeds from Cantor Charity Day will benefit the Cantor Fitzgerald Relief Fund, which aids the families of the firm’s 658 employees who perished in the World Trade Center attacks. Since its 2001 establishment, the Relief Fund has expanded its reach to also support victims of terrorism, natural disasters, and emergencies, wounded military personnel, and other charitable causes worldwide, including HHF.

Marty making trades on the phone

Marty making trades on the phone

HHF CEO Nadine Dehgan reflects on the day: “Being part of this event where everyone gets together for the sole purpose of helping others is so inspiring. I am honored HHF was selected to participate again and grateful for the folks who make it happen, especially the Relief Fund’s President, Edie Lutnick, whose energy is unmatched. Marty was a superstar on the phone helping make trades!”

The Fund’s prioritization of wounded veterans is especially compatible with HHF’s work; tinnitus and hearing loss are the most common disabilities that afflict returning American military members.

“HHF will use the funds received from this event to continue to be a resource for veterans with hearing loss and to further research for treatments and cures for the 360 million people around the world who have hearing loss,” Nadine pledges.

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Welcome to HHF's New Website!

By Nadine Dehgan, CEO, Hearing Health Foundation

Hearing Health Foundation (HHF) proudly introduced a new website today, August 2. The contemporary design features an engaging storytelling format, clear calls to action, and mobile responsiveness, all of which will enable HHF to better serve and communicate with constituents.

Take a look around to familiarize yourself with HHF’s new virtual headquarters. Below are the site’s most exciting improvements:

Simplified Navigation Bar
We reduced our primary navigation bar to just six categories inspired by user analytics from our old website. Choose from About, How to Help, Research, News, Resources, and Hearing Loss. Between the home page and these six key sections, you will find everything you need.

Streamlined Donation & Partnership Hub
How to Help lists every single action that you can take to advance cures and treatments for hearing loss, tinnitus, and related conditions. The options shown here apply to both individual contributors and corporate partners.

Mobile-Friendliness
Did you ever visit the old HearingHealthFoundation.org on your cell phone? If you did, you probably quickly abandoned the page, frustrated by small text and the need to zoom in and out. Our new website fits perfectly on your smartphone or tablet. Try it!

Consolidation of Research Programs
The Research page provides information on our programs, Emerging Research Grants (ERG), Hearing Restoration Project (RFP), and, the newest, Ménière's Disease Grants (MRG), to keep you informed of our critical investigative work. The reorganization of the Research Programs will also more efficiently attract talented scientists who are researching cures and treatments.

Centralized E-Newsletter and Hearing Health Magazine Registration
Subscribing to HHF is no longer a two-step process. Conveniently opt into to our e-newsletter and free print magazine with fewer clicks on the Subscribe page. The modification will increase viewership and, therefore, hearing health awareness.

More Social Sharing Options
Share useful educational resources or inspiring blog posts with your friends and family seamlessly. Every page includes a sharing sidebar from which you can quickly send information through social media or email.

Ad Space
The new website is more customizable than the previous, allowing for greater advertising capacity. As a result, more organizations will be able to contribute to HHF’s life-changing research and education programs and show commitment to the many Americans with hearing loss, tinnitus, and related conditions.

We welcome your feedback about the new website in the comments section.

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Meet HHF's Small But Mighty Team

By Nadine Dehgan

Hearing Health Foundation (HHF) is working around the clock to help find cures and treatments and also to better the lives of those with hearing loss. And we are doing it with a small and incredible team.

Recently I attended a bowling outing with HHF's full-time staff and our mighty army of interns. (Please see the photo.) Missing are Yishane Lee and Robin Wisser Kidder whose wonderful talent is used to edit and design Hearing Health magazine; Caroline Oberweger who aids with foundation grants; and Frankie Huang who helped as a marketing intern.

From left to right: Stephanie Jacovina, Breana King, Shawaza Majeed, Laura Friedman, Nadine Dehgan, Hai Zhou and Kelly Barahona

From left to right: Stephanie Jacovina, Breana King, Shawaza Majeed, Laura Friedman, Nadine Dehgan, Hai Zhou and Kelly Barahona


Thanks to these talented people, HHF has been able to: 

  • Increase awareness of preventable noise-induced hearing loss by developing. partnerships with peer organizations and corporations.

  • Register to fundraise in every state—a necessary and time-consuming process.

  • Write blog posts and magazine articles on various hearing loss topics as well as hearing research.

  • Secure media placement in the following outlets: The New Yorker, The Guardian, Men’s Journal, and others.

  • Rewrite our internal policies and procedures to streamline activities and reduce costs.

  • Send supporters and constituents countless communications including magazines, letters, and appeals to raise funds so we can continue our important work.

  • Communicate with the Federal Drug Administration, Federal Trade Commission, and various elected officials regarding the critical need for affordable hearing health care (e.g.,. over-the-counter hearing aids) and significance of funding hearing research.

  • Advocate for the reversal of the 2018 federal budget’s proposed elimination of all federalUniversal Newborn Hearing Screening funding, $18 million in total.

  • Announce our newly formed partnership with Hearing Charity of America’s Hearing Aid Donation Project to collect used hearing aids to give to those who need.

  • Increase Hearing Health magazine ad sales revenue enabling HHF to invest in growing its readership.

  • Continue to receive top ratings from charity watchdogs with HHF named twice in two categories in Consumer Reports’ top five best charities.

  • And most importantly increase funding to our critical hearing and balance research programs promoting innovative approaches by both early-stage scientists and established experts in their fields!

At HHF we all live and breathe our mission. I would like to recognize and express my gratitude to those the who give of their time and talent to our cause.

There is much to do and many unmet research needs—but together we will get there.

From the bottom of my heart I am grateful and hope you wil join me in thanking these folks. They help make it all possible.

Nadine Dehgan is the chief executive officer of Hearing Health Foundation.

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Hearing Health Foundation and Hearing Charities of America Join Forces

By Laura Friedman

Hearing Health Foundation and Hearing Charities of America Join Forces

Hearing Charities of America (HCOA) and Hearing Health Foundation are excited to announce a newly formed partnership in an effort to collect hearing aids that will be given to low-income individuals through the HCOA’s national assistance program, The Hearing Aid Project.

One quarter of Americans ages 20 to 65 suffer from hearing loss, which makes it one of the country’s most widespread public health concerns. The Hearing Aid Project was created to provide access to affordable hearing health services, while creating collaborative relationships to support this mission.

Countless hearing aids sit unused in drawers or are discarded once new hearing aids are purchased. Hearing Health Foundation is now a collection center for The Hearing Aid Project to ensure that quality, donated hearing aids can be refurbished and given to those in need.

“Hearing Health Foundation is thrilled to join forces with Hearing Charities of America and do our part in collecting hearing aids to be refurbished and distributed to those who need them,” said Nadine Dehgan, HHF’s CEO. “Minimal health insurance and Medicare coverage, as well as out-of-pocket costs, have been a major hurdle for many who could benefit from using hearing aids. Until quality hearing healthcare is available to all of the 48 million Americans living with hearing loss, HHF is glad to be doing its part to provide hearing aid assistance to those in need,” Dehgan said.

Hearing Charities of America and Hearing Health Foundation believe that healthy hearing should be enjoyed by all. To donate your hearings aids to be refurbished, please contact Hearing Health Foundation at info@hhf.org or 212-257-6140.

THE HEARING HEALTH CHALLENGE

In celebration of Better Hearing and Speech Month in May, Hearing Health Foundation is launching the Hearing Health Challenge. Although hearing loss is commonly associated with one’s normal aging process, more than half of those with hearing loss are younger than 65. The top two war wounds for active military personnel and veterans are hearing loss and tinnitus, accounting for 60 percent of this population.

Unfortunately, only 13 to 33 percent of those who need hearing aids use them; financial constraints, the lack of a perceived need, and stigma are leading reasons why hearing loss goes untreated for an average of 7 to 10 years after diagnosis. Hearing Health Foundation is committed to reducing the stigma, educating the public on the dangers of noise, advocating for greater access to hearing health care, and funding the best science to find better treatments and cures for hearing loss and its associated disorders.

CHALLENGE

  • For every hearing aid received within the month of May, a $200 cash donation will be made to HHF by an anonymous donor to support hearing research. 
     

  • For every dollar donated within the month of May, that dollar will be matched up to $33,500 by an anonymous donor to support hearing research.  

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