You’re Invited: Comprehensive Hearing Health Experience in February 2018

By Lauren McGrath

In honor of our 60th anniversary, Hearing Health Foundation (HHF)’s Board Chair, Elizabeth Keithley, Ph.D., is hosting Hearing360—an educational and social forum at the San Diego Central Library—in early 2018. Hearing360 seeks to engage HHF’s San Diego area constituents with the latest updates in hearing research and everyday guidance for hearing health.

Featured event speakers include scientists Ronna Hertzano, M.D. and Andy Groves, Ph.D. from HHF’s Hearing Restoration Project (HRP), the world’s first international consortium dedicated to identifying a permanent biological cure for hearing loss. Their individual presentations on the regeneration of hair cells in the inner ear will be followed by a brief Q&A session.

Ronna Hertzano, M.D.

Andy Groves, Ph.D.

Hearing360 will also honor the generosity of longtime HHF supporters Frank and Chris De Francesco, who shared their experiences raising a child with profound hearing loss in “Why We Believe in Hearing Health Foundation,” which appeared in the Fall 2017 issue of Hearing Health magazine.

Scheduled for Sunday, February 11 from 3:00 - 5:00 PM in the San Diego Central Library’s Shiley Special Event Suite, Hearing360 will be fully accessible with a t-coil loop system and open captioning. Light refreshments and wine will be available.

Limited space is available and an RSVP is required for all guests. We look forward to meeting you in San Diego. Please contact HHF at events@hhf.org with any questions regarding Hearing360.

Universal Newborn Hearing Screening to Prevail Under EHDI Act of 2017

By Nadine Dehgan

Federal funding for universal newborn hearing screening will prevail until 2022 under the The Early Hearing Detection and Intervention (EHDI) Act of 2017, which officially became law last month. Hearing Health Foundation (HHF) is ecstatic that there was bipartisan support for critical early testing and intervention for children with hearing loss.

Introduced in March by Representatives Brett Guthrie (R-KY) and Doris Matsui (D-CA) as an amendment to the Public Health Service Act, the EHDI calls for early detection, diagnosis, and treatment of deaf and hard-of-hearing newborns, infants, and young children. Each day nationwide, 33 newborn babies—approximately three out of every 1,000 births—are diagnosed with hearing loss, making it the most common congenital birth defect. Left undetected, hearing loss can negatively impact a child’s speech and language acquisition, academic achievement, and social and emotional development.

HHF, a long-time supporter of universal hearing screening for newborns, applauds the enactment. HHF was instrumental in highlighting the need for similar legislation in the 1990s. In 1993, only 5% of newborns were tested at birth for hearing loss. By 1997, 94% were tested before leaving the hospital, and today 97% of babies are screened before they leave the hospital.

Earlier drafts of the federal budget put the coverage of these crucial procedures at risk, prompting legislators in both the Republican and Democratic Parties to take action quickly. In addition to the bill in the House, a companion measure was introduced in the Senate by Senators Rob Portman (R-OH) and Tim Kaine (D-VA). In early October, the House passed the Act following the Senate’s unanimous approval in September.

“This program exemplifies the importance of early detection and intervention,” said Congresswoman Matsui. “By ensuring that infants have access to hearing screenings at birth, parents can make informed choices about their care management early on. This is critically important, given that so much of a child’s development happens in the first few years of their life. I’m pleased that through the passage of this legislation, the newborn screening and intervention program can continue to improve health outcomes for kids.”

HHF Attends Cantor Fitzgerald’s Charity Day, a Star-Spangled Effort to Build Hope on Tragic 9/11 Anniversary

By Yvonnie Phan

Hearing Health Foundation (HHF) was among the dozens of charities selected to participate in yesterday’s Cantor Charity Day—an annual, celebrity-filled philanthropic event held around the anniversary of September 11—at Cantor Fitzgerald’s New York City headquarters.

From left: HHF Board Vice Chair Paul Orlin, Cantor Fitzgerald Relief Fund President Edie Lutnick, Former Hockey Star Martin St. Louis, HHF CEO Nadine Dehgan

HHF’s attendance marked the organization’s fifth year of participation. HHF was represented by Hockey Legend Martin “Marty” St. Louis, HHF Board member Paul Orlin, and Nadine Dehgan, HHF’s CEO.

As Marty’s own foundation has supported HHF’s life-changing hearing and balance research in the past, HHF was especially thankful that he also dedicated his time to serve as an ambassador.

Marty St. Louis and Robert De Niro

The HHF trio had a particularly memorable encounter with Robert De Niro and another hockey star, Mike Richter, who were also among Charity Day’s celebrity roster. Marty told Mr. De Niro that in his days as a player (for Tampa Bay Lighting, Calgary Flames, and the New York Rangers), he impersonated De Niro’s film roles in the locker room to energize his teammates before big games—and the movie star found that amusing.

All proceeds from Cantor Charity Day will benefit the Cantor Fitzgerald Relief Fund, which aids the families of the firm’s 658 employees who perished in the World Trade Center attacks. Since its 2001 establishment, the Relief Fund has expanded its reach to also support victims of terrorism, natural disasters, and emergencies, wounded military personnel, and other charitable causes worldwide, including HHF.

Marty making trades on the phone

HHF CEO Nadine Dehgan reflects on the day: “Being part of this event where everyone gets together for the sole purpose of helping others is so inspiring. I am honored HHF was selected to participate again and grateful for the folks who make it happen, especially the Relief Fund’s President, Edie Lutnick, whose energy is unmatched. Marty was a superstar on the phone helping make trades!”

The Fund’s prioritization of wounded veterans is especially compatible with HHF’s work; tinnitus and hearing loss are the most common disabilities that afflict returning American military members.

“HHF will use the funds received from this event to continue to be a resource for veterans with hearing loss and to further research for treatments and cures for the 360 million people around the world who have hearing loss,” Nadine pledges.

Welcome to HHF's New Website!

By Nadine Dehgan, CEO, Hearing Health Foundation

Hearing Health Foundation (HHF) proudly introduced a new website today, August 2. The contemporary design features an engaging storytelling format, clear calls to action, and mobile responsiveness, all of which will enable HHF to better serve and communicate with constituents.

Take a look around to familiarize yourself with HHF’s new virtual headquarters. Below are the site’s most exciting improvements:

Simplified Navigation Bar
We reduced our primary navigation bar to just six categories inspired by user analytics from our old website. Choose from About, How to Help, Research, News, Resources, and Hearing Loss. Between the home page and these six key sections, you will find everything you need.

Streamlined Donation & Partnership Hub
How to Help lists every single action that you can take to advance cures and treatments for hearing loss, tinnitus, and related conditions. The options shown here apply to both individual contributors and corporate partners.

Mobile-Friendliness
Did you ever visit the old HearingHealthFoundation.org on your cell phone? If you did, you probably quickly abandoned the page, frustrated by small text and the need to zoom in and out. Our new website fits perfectly on your smartphone or tablet. Try it!

Consolidation of Research Programs
The Research page provides information on our programs, Emerging Research Grants (ERG), Hearing Restoration Project (RFP), and, the newest, Ménière's Disease Grants (MRG), to keep you informed of our critical investigative work. The reorganization of the Research Programs will also more efficiently attract talented scientists who are researching cures and treatments.

Centralized E-Newsletter and Hearing Health Magazine Registration
Subscribing to HHF is no longer a two-step process. Conveniently opt into to our e-newsletter and free print magazine with fewer clicks on the Subscribe page. The modification will increase viewership and, therefore, hearing health awareness.

More Social Sharing Options
Share useful educational resources or inspiring blog posts with your friends and family seamlessly. Every page includes a sharing sidebar from which you can quickly send information through social media or email.

Ad Space
The new website is more customizable than the previous, allowing for greater advertising capacity. As a result, more organizations will be able to contribute to HHF’s life-changing research and education programs and show commitment to the many Americans with hearing loss, tinnitus, and related conditions.

We welcome your feedback about the new website in the comments section.

Meet HHF's Small But Mighty Team

By Nadine Dehgan

Hearing Health Foundation (HHF) is working around the clock to help find cures and treatments and also to better the lives of those with hearing loss. And we are doing it with a small and incredible team.

Recently I attended a bowling outing with HHF's full-time staff and our mighty army of interns. (Please see the photo.) Missing are Yishane Lee and Robin Wisser Kidder whose wonderful talent is used to edit and design Hearing Health magazine; Caroline Oberweger who aids with foundation grants; and Frankie Huang who helped as a marketing intern.

From left to right: Stephanie Jacovina, Breana King, Shawaza Majeed, Laura Friedman, Nadine Dehgan, Hai Zhou and Kelly Barahona

Thanks to these talented people, HHF has been able to: 

• Increase awareness of preventable noise-induced hearing loss by developing. partnerships with peer organizations and corporations.

• Register to fundraise in every state—a necessary and time-consuming process.

• Write blog posts and magazine articles on various hearing loss topics as well as hearing research.

• Secure media placement in the following outlets: The New Yorker, The Guardian, Men’s Journal, and others.

• Rewrite our internal policies and procedures to streamline activities and reduce costs.

• Send supporters and constituents countless communications including magazines, letters, and appeals to raise funds so we can continue our important work.

• Communicate with the Federal Drug Administration, Federal Trade Commission, and various elected officials regarding the critical need for affordable hearing health care (e.g.,. over-the-counter hearing aids) and significance of funding hearing research.

• Advocate for the reversal of the 2018 federal budget’s proposed elimination of all federalUniversal Newborn Hearing Screening funding, $18 million in total.

• Announce our newly formed partnership with Hearing Charity of America’s Hearing Aid Donation Project to collect used hearing aids to give to those who need.

• Increase Hearing Health magazine ad sales revenue enabling HHF to invest in growing its readership.

• Continue to receive top ratings from charity watchdogs with HHF named twice in two categories in Consumer Reports’ top five best charities.

• And most importantly increase funding to our critical hearing and balance research programs promoting innovative approaches by both early-stage scientists and established experts in their fields!

At HHF we all live and breathe our mission. I would like to recognize and express my gratitude to those the who give of their time and talent to our cause.

There is much to do and many unmet research needs—but together we will get there.

From the bottom of my heart I am grateful and hope you wil join me in thanking these folks. They help make it all possible.

Nadine Dehgan is the chief executive officer of Hearing Health Foundation.

Hearing Health Foundation and Hearing Charities of America Join Forces

By Laura Friedman

Hearing Health Foundation and Hearing Charities of America Join Forces

Hearing Charities of America (HCOA) and Hearing Health Foundation are excited to announce a newly formed partnership in an effort to collect hearing aids that will be given to low-income individuals through the HCOA’s national assistance program, The Hearing Aid Project.

One quarter of Americans ages 20 to 65 suffer from hearing loss, which makes it one of the country’s most widespread public health concerns. The Hearing Aid Project was created to provide access to affordable hearing health services, while creating collaborative relationships to support this mission.

Countless hearing aids sit unused in drawers or are discarded once new hearing aids are purchased. Hearing Health Foundation is now a collection center for The Hearing Aid Project to ensure that quality, donated hearing aids can be refurbished and given to those in need.

“Hearing Health Foundation is thrilled to join forces with Hearing Charities of America and do our part in collecting hearing aids to be refurbished and distributed to those who need them,” said Nadine Dehgan, HHF’s CEO. “Minimal health insurance and Medicare coverage, as well as out-of-pocket costs, have been a major hurdle for many who could benefit from using hearing aids. Until quality hearing healthcare is available to all of the 48 million Americans living with hearing loss, HHF is glad to be doing its part to provide hearing aid assistance to those in need,” Dehgan said.

Hearing Charities of America and Hearing Health Foundation believe that healthy hearing should be enjoyed by all. To donate your hearings aids to be refurbished, please contact Hearing Health Foundation at info@hhf.org or 212-257-6140.

THE HEARING HEALTH CHALLENGE

In celebration of Better Hearing and Speech Month in May, Hearing Health Foundation is launching the Hearing Health Challenge. Although hearing loss is commonly associated with one’s normal aging process, more than half of those with hearing loss are younger than 65. The top two war wounds for active military personnel and veterans are hearing loss and tinnitus, accounting for 60 percent of this population.

Unfortunately, only 13 to 33 percent of those who need hearing aids use them; financial constraints, the lack of a perceived need, and stigma are leading reasons why hearing loss goes untreated for an average of 7 to 10 years after diagnosis. Hearing Health Foundation is committed to reducing the stigma, educating the public on the dangers of noise, advocating for greater access to hearing health care, and funding the best science to find better treatments and cures for hearing loss and its associated disorders.

CHALLENGE

• For every hearing aid received within the month of May, a $200 cash donation will be made to HHF by an anonymous donor to support hearing research. 
   

• For every dollar donated within the month of May, that dollar will be matched up to $33,500 by an anonymous donor to support hearing research.  

HHF Welcomes New Board Members in April 2017

By Nadine Dehgan

Hearing Health Foundation (HHF) is delighted to welcome Bob Shannon, Ph.D., and Ruth Anne Eatock, Ph.D., to our Board of Directors. Their unwavering commitment toward advancing research to better understand hearing loss and its associated disorders make Drs. Shannon and Eatock perfect additions to our leadership team.

Dr. Robert Shannon is a research professor of otolaryngology at the University of Southern California’s Keck School of Medicine with over four decades of experience in researching auditory perception and psychoacoustics. He also serves as an editor and reviewer for several prominent scientific journals and funding agencies and has published more than 100 scientific articles on his research. Most recently Dr. Shannon has been a primary investigator on research studies that advance the technology and effectiveness of the auditory brainstem implant (ABI), an auditory prosthesis for people who have a non-functioning auditory nerve. The ABI is the first device approved by the Food and Drug Administration for prosthetic electrical stimulation of the human brainstem.

“I initially got involved with HHF (then DRF) by joining the Science Review Committee, to ensure the high quality of the research proposals, and later joined the Council of Scientific Trustees,” said Dr. Shannon. “Now I look forward to continued service on the HHF Board of Directors to have an integral role in pushing the Foundation’s research efforts forward.”

Dr. Ruth Anne Eatock is a professor of neurobiology and the dean of Faculty Affairs for the Biological Sciences Division at the University of Chicago. She trained at McGill, Caltech, the Massachusetts Eye and Ear Infirmary, and MIT, and has held academic positions in otolaryngology and neuroscience departments at University of Rochester, Baylor College of Medicine, and Harvard. She has experience mentoring students, fellows and clinical scientists in sensory processing by the inner ear, reviewing federal and private grant applications, editing and reviewing research papers, and organizing hearing research meetings.  These experiences have given her a broad appreciation of the progress and goals driving our diverse hearing research community.

Dr. Eatock notes: “My first independent grant was a Deafness Research Grant (now known as Emerging Research Grants), so I am well aware of the importance of such seed funding in helping new investigators establish themselves and advance hearing research.”

HHF is excited to have Drs. Bob Shannon and Ruth Anne Eatock as new members of our Board of Directors and we look forward to their contributions toward HHF’s mission. Please join us in giving them both a warm welcome!

AudiologyNow! 2017

By Kathleen Wallace

The American Academy of Audiology’s (AAA) annual conference, AudiologyNow!, took place in the Indianapolis Convention Center in early April. Although four days of lectures addressed nearly every aspect of the audiological scope of practice, one overarching theme emerged this year: How will the field of audiology evolve from here?

This past year has posed various disruptions to the field of audiology, such as how over-the-counter hearing aid legislation will change delivery of services, how the continued interest in personal sound amplification products (PSAPs, also called “hearables”) will guide consumer choice, and how to improve evaluations and interventions to best serve individuals with hearing loss. These questions, along with many others, fueled an exciting dialogue among professionals from around the country.

AAA President Ian Windmill, Ph.D., urged members of the academy to embrace disruptions to the field, including the recently introduced legislation for nonprescription hearing aids. Although these changes may appear as an encroachment on the audiological scope of practice, Dr. Windmill urged that these may actually be beneficial to the field.

Dr. Windmill said hearing healthcare has never been more in the public eye or as highly discussed by health officials, politicians, and consumers than in this past year. This increased awareness could lead to the prioritization of hearing health, as consumers grow more cognizant of the repercussions of hearing loss. Furthermore, the introduction of hearing solutions at various price points and technology levels may improve accessibility. If audiologists were to embrace these alternatives to intervention, they will successfully evolve with the field while simultaneously demonstrating to consumers their dedication to patient-centered care.

This sentiment was echoed throughout the conference’s sessions. Additionally, multiple lectures discussed how audiologists could improve delivery of patient-centered care by improving counseling skills, utilization of self-assessments, and consumer education to shift the locus of control from care provider to joint decision-making between the consumer and the hearing provider.

Lastly, leading professionals in the field encouraged a return to the audiologists’ roots as rehabilitative professionals. In the years since the audiological scope of practice expanded to include the ability to dispense hearing aids, audiologists have slowly shifted their focus from providing rehabilitative services to a device-driven service centered on hearing aids. However, the delivery of unprecedented auditory rehabilitation to foster successful communication strategies will enable our profession to succeed in the face of the many disruptions to hearing technology.

AAA’s willingness to acknowledge the challenges facing hearing healthcare is very promising to its successful evolution as a field. Although the field of audiology is currently experiencing some growing pains, many hearing healthcare professionals are embracing this opportunity to rethink the delivery of care and how to improve patient satisfaction by challenging the status quo.

High-Tech Hope for the Hard of Hearing

"In 2011, the Hearing Health Foundation based in New York, created the Hearing Restoration Project, a consortium of fourteen scientists who agreed to work together toward that goal, partly with funding from the foundation. One of the originators of the project, Edwin Rubel, who was a co-discoverer of hair-cell regrowth in chickens, told me, “It’s potentially the best thing that ever happened, because it really does bring together a lot of different kinds of expertise.”

Hearing Health Foundation's work toward finding better therapies and cures for hearing loss and tinnitus was featured in the April 3, 2017 Issue of T High-Tech Hope for the Hard of Hearing he New Yorker Magazine. Read the article here.

Our 2016 Annual Report Is Now Available!

By Frankie Huang

Hearing Health Foundation (HHF) is happy to announce that its 2016 annual report is now available. The report is an in-depth review of our activities, events, and achievements for fiscal year 2016. We are very proud of top marks from top charity-rating agencies and even more proud our audited financial statements.

We are fortunate to have such generous supporters who raised funds to further HHF’s mission of prevention, education, and research. Check out our supporters' creative and unique fundraisers; if you feel inspired and would like to organize an event of your own, please contact us at development@hhf.org.

In 2016, the Hearing Restoration Project (HRP) has made significant strides, bringing us closer to finding a cure for hearing loss and tinnitus. Here are just two of the HRP’s discoveries:

• Successfully disrupted gene expression in the adult mouse cochlea, including capturing high-quality images—necessary for testing genes in regeneration.
   

• Confirmed that the “DTR mouse” is an excellent platform for studying ways to stimulate hair cell regeneration in the mammalian inner ear.

HHF awarded nine Emerging Research Grants (ERGs) to early-career scientists who are pursuing projects in the areas of Central Auditory Processing Disorder (CAPD), Hyperacusis, Ménière's disease, Stria, and Tinnitus. Through ERG, we hope to uncover better treatment options and deeper understanding of these disorders.

Last but certainly not least, we want to express our gratitude and appreciation for our many donors; because of their support, we were able to continue with our important work. To see your name on our next donors’ list, we gladly welcome and appreciate your gift in any amount made by Sept. 30, 2017.