Hearing Loss Resources

My Cautious Gratitude

By Lauren McGrath

  Clockwise from left: Heather, her daughter, her husband, and son.

Clockwise from left: Heather, her daughter, her husband, and son.

Heather Mills never imagined her early adulthood would be interrupted by Ménière's disease, a chronic hearing and balance disorder without a cure. She was diagnosed at 21—just within the typical 20-to-50-year-old range of onset—after a slew of tests and follow-up visits with a specialist at the University of Minnesota.

Heather’s symptoms initially included a unilateral (in one ear) mild low-frequency hearing loss, tinnitus, and some ear pressure and pain. Within a few years, her hearing loss became bilateral and worsened from moderate to severe. She was regularly distressed by intense ear pressure, struggled with her balance, and experienced occasional bouts of vertigo. As Heather learned, Ménière's affects each patient differently. She considered herself fortunate not to face drop attacks (instances of falling to the ground without losing consciousness), one of the most terrifying symptoms associated with Ménière's disease.

Despite its prevalence Heather family, hearing loss—once her most debilitating Ménière's symptom—came as a surprise. Her father has lived with a unilateral hearing loss since childhood, while her mother and maternal grandmother both developed high-frequency sensorineural hearing loss in their late 40s. “It never occurred to me that it may one day affect me, too,” reflects Heather, who can recall her ability to hear whispers across her high school classrooms.

Though she followed her doctor’s directions to take diuretics and maintain a low-salt diet for her vestibular symptoms, Heather chose not to purchase hearing aids. Lacking amplification, Heather faced difficulty in her job as a legal project specialist, which required frequent verbal interaction with clients, lawyers, and vendors both on the phone and in person. She found herself increasingly dependent on a close friend and colleague who truly served as her ears by repeating information for her during and after meetings.

Heather’s untreated hearing loss, combined with her constant fear of a sudden vertigo attack, fueled feelings of isolation. Unable to participate in conversations with friends, Heather stopped receiving invites to social outings. Challenges with work and friends began to affect Heather’s mental health. “I became depressed, lonely, and developed anxiety because of two unknowns: not knowing when my vertigo would strike again, and wondering how I’d continue to work to support my family.”

Heather noticed a sharp decline in her job performance when her helpful coworker—her ears—left the law firm. Part of Heather’s role required instructing staff on new software, and she was humiliated to find out that her trainees’ questions went unanswered because they’d not been heard. “This is when I began to lose confidence in myself,” Heather remembers.

Heather realized she had to address her hearing loss. In line with Hearing Health Foundation (HHF)’s findings in a 2017 survey of more than 2300 participants, cost is by far the largest barrier to a hearing aid purchase. Heather delayed taking action for so many years—11 to be exact—because her insurance provided no hearing healthcare coverage.

“All I can say now is I wish I had gotten hearing aids sooner!” exclaims Heather, who, with newfound confidence, no longer struggles in her daily professional communications and social life. Prior to pursuing treatment, her conversations had soured quickly when she constantly had to ask other parties to speak up, repeat themselves, or remind them of her hearing loss. Most painfully, communication without hearing aids often left Heather dismissed by a “nevermind” when she requested repetition. With her new devices, Heather felt her confidence restored.

Now in remission, Heather considers her life happy and her health stable. Hearing aids have somewhat alleviated her tinnitus, her ear pressure has subsided, and the vertigo spells are very rare. She’s sought treatment for her anxiety and depression. Heather credits her husband, Billy, with whom she has two young children, for his support during her more difficult years. Engaging in online Ménière's support groups has been a beneficial coping tool.

Heather is cautiously grateful for her current health, knowing the unpredictability of Ménière's could alter her circumstances at any time. She hopes for scientific advancements in Ménière's research that will one day uncover the causes, more reliable diagnostic procedures, and a cure.

Heather lives in Minnesota with her husband and children. She is a participant in HHF’s Faces of Hearing Loss campaign.

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Sudden Hearing Loss Is a Medical Emergency

By Donna Rohwer

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Mondays are always bad, right? I awoke deaf in my left ear—completely deaf. I asked my husband if he thought it was anything to worry about and he said, “Not yet.” I thought the same and appreciated the confirmation. We didn’t know then that sudden hearing loss is a medical emergency.

Sudden Sensorineural Hearing Loss (SSHL)

Damage to the inner ear, the cochlea, or related nerve pathways cause SSHL. A loss of 30 decibels or more in three consecutive frequencies in one or both ears within several days is considered SSHL. Immediate treatment can make partial or total recovery more likely. Unfortunately, many medical professionals— from emergency room to waiting room—don’t recognize SSHL or know how to treat it. As a result, many patients lose the opportunity for recovery because they don’t get the right treatment within the critical time. In my case, I received treatment within a week—it wasn’t optimal, but better than many. I had no significant recovery.  

SSHL Is LOUD, Isolating, and Devastating

The shocking thing to SSHL patients is how LOUD everything becomes. Sounds distort and blend together, sound direction is lost, and every sound seems magnified. The tinnitus is sudden and loud, with whooshing, popping, and other sounds. The tinnitus often worsens with activity or background noise, and goes long into the night. Some people don’t feel well, see well, sleep well, or balance well. SSHL strains relationships and many people simply stop participating in activities. I felt as if I had lost my life.  

SSHL Can Be Life-Threatening

I consoled myself at first that my condition wasn’t life-threatening. Within weeks, however, I no longer wanted to go on living. I later learned that many people respond this way. Physicians recognize the psychological impact when someone loses a limb. Losing the sense of hearing, suddenly, is not dissimilar. I didn’t know how to live with SSHL, or where to turn for support. I felt abandoned until I received the mental health support I urgently needed.

Alone at the Table

I have slowly reclaimed my life through the support of family, friends, and several Facebook groups. I also have used a cognitive therapy course for tinnitus, antidepressants (briefly), and months of working through the process. But there are still moments. My passion is recreational poker. I recently played with a mixed group, some with typical hearing, some with hearing loss. The hearing people were talking, but the background noise kept me from understanding them, and I don’t know ASL. I felt alone at the table—caught somewhere between the hearing world and the deaf world.

What Do We, as SSHL Patients, Want?

We want non-ENT medical professionals to learn about SSHL and treat it as a medical emergency. We want ENT doctors to recognize the psychological aspects of SSHL and refer us to appropriate resources. We want hearing loss advocates to see that SSHL has unique challenges different from other kinds of hearing loss. Lastly, we want a cure.

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Eight Pairs of Earplugs in Four Noisy Settings: My Hearing Protection Experiment

By Kayleen Ring

Before my 2018 summer internship at Hearing Health Foundation (HHF) in New York City, I underestimated the importance of protecting my ears, often leaving myself at risk for damage from noise at concerts, sporting events, and other loud places. I took my typical hearing for granted until learning that hearing loss is largely caused by noise exposure and can negatively impact the brain function of young adults, even in its mildest forms. But I was also encouraged to discover noise-induced hearing loss (NIHL) is preventable. Earplugs in particular are a convenient, low-cost tool for hearing preservation.

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To improve my own hearing health and to create awareness about NIHL, I experimented with different types of earplugs in various loud settings. Expecting no more than a handful of foam options, I was excited to learn what an assortment of earplugs is available—each with different shapes, sizes, and features. Previously, my earplug experience had been limited to basic foam pairs to drown out my college roommates’ snoring!

I evaluated each personal earplug use experience with a 1 to 10 rating—10 being highest—for effectiveness, comfort, and ease of use. The Noise Reduction Rating (NRR) metric indicates how much noise is blocked out by the pair of earplugs.

Setting: Concerts

Just one loud concert (decibel levels up to 120 dB) can cause permanent damage to your ears. I tested earplugs at two musical events.

1. Eargasm High Fidelity Ear Plugs

  • NRR: 16 dB

  • Effectiveness: 10

  • Comfort: 10

  • Ease of Use: 10

At first, I worried wearing earplugs at a performance by one of my favorite artists would negatively affect my concert experience, but this pair allowed me to hear and enjoy the music perfectly at a reduced volume. They were so comfortable I forgot they were in my ears! They were easy to remove using the pull tab and I  also liked the carrying case they come in, because it fits in my small bag and keeps the earplugs hygienic for reuse.

2. Moldex Pocket Pak Squeeze

  • NRR: 27 dB

  • Effectiveness: 8

  • Comfort: 9

  • Ease of Use: 9

The triple-flange design, neck cord, and carrying case provided a secure earplug experience at an even louder concert where sound levels spiked to 120 dB. Unprotected exposure to noise at this level, which is equivalent to that of ambulance sirens or thunderclaps, can damage hearing in seconds. Fortunately, the ridged edges on the earplugs I used made inserting them far easier and faster than foam earplugs that need to be shaped prior to use.

Setting: Group Fitness

At a popular group fitness class, I recorded sound decibel levels and the results showed extremely loud and dangerous levels of noise. The average was 91 dB and the max was 119 dB over the one-hour class period. For a healthier workout, I wore earplugs.

3. Mack’s Blackout Foam Earplugs

  • NRR: 32 dB

  • Effectiveness: 9

  • Comfort: 10

  • Ease of Use: 9

These were excellent because I was able to hear the music and the trainers’ instructions, just at a lower volume. Less distracted by the loud music than usual, I was able to focus more carefully on my workout and form. They fit snugly and stayed in place over the course of the 60-minute, high-intensity session.

4. EarPeace “HD” High Fidelity Earplugs

  • NRR: 19 dB

  • Effectiveness: 10

  • Comfort: 10

  • Ease of Use: 8

I was particularly impressed that this pair included three set of filters offering different levels of protection. I used the highest decibel filter, 19 dB, and found the class music was still clear and enjoyable. My only challenge was properly inserting the very small filters.

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Setting: Restaurants

When I didn’t intern at HHF this summer, I worked at a restaurant on Long Island, New York, that was always busy, sometimes bursting with chatty customers waiting three hours for service. Beyond the crowds, the restaurant had live musical performances that amplified an already loud environment. This is dangerous for workers and patrons alike. Here, the earplugs I wore still allowed me to hear clearly and hold a conversation.

5. Etymotic ER20XS High-Fidelity Earplugs (NRR: 13 dB)

  • NRR: 13 dB

  • Effectiveness: 8

  • Comfort: 8

  • Ease of Use: 9

The Etymotic earplugs had the positive qualities of the typical high-fidelity earplugs and included three interchangeable eartips, a hygenic carrying case, and a neck cord, providing a secure and effective earplug experience.

6. EarPeace “S”High Fidelity Earplugs

  • NRR: 19 dB

  • Overall Effectiveness: 10

  • Comfort: 10

  • Ease of Use: 10

This pair was great. They reduced the noise perfectly so it was at a comfortable yet still audible volume. The dual-flange design and soft silicone material made the earplugs fit well, were comfortable and easy to use.

Setting: New York City Subway

Decibel levels on the subway platforms trains are extremely high and can cause hearing damage, especially for frequent riders and employees. For my tests, I sat inside the 34th St-Penn Station 1/2/3 subway station across the street from the HHF office, where I was greeted by screeching trains, talkative tourists, and a steel drums player.

7. Moldex Sparkplugs

  • NRR: 33 dB

  • Overall Effectiveness: 9

  • Comfort: 10

  • Ease of Use: 9

The Sparkplugs blocked out noise while allowing me to hear conversations and train announcements. They were easy to mold into my ears, allowing for optimal noise reduction. The pattern on the earplugs is colorful and fun, making them appealing for children, and easily locatable in your bag.

8. Alpine Plug & Go

  • NRR: 30 dB

  • Overall Effectiveness: 8

  • Comfort: 8

  • Ease of Use: 8

These foam earplugs reduced volume but the noise was muffled. Consequently, these would be a great option for more sedentary activities, like sleeping and flying, where you are aiming to block out all noise. The foam was comfortable and fit snugly in my ears, but was challenging to mold.

The reviews and ratings here are based on my individual experiences and are not intended to encourage or discourage anyone’s use of specific earplugs. High ratings are not product endorsements. As someone newly informed about the dangers of noise, it is my hope my summer intern experiment for HHF will raise awareness and inspire others to investigate hearing protection that best meets their needs.

Kayleen Ring is a former marketing and communications intern at HHF. She studies marketing in the honors program at Providence College in Rhode Island.

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ReSound LiNX Quattro: More Access to Sound; Rechargeable Convenience

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By Dr. Laurel A. Christensen

In September, GN Hearing launched ReSound LiNX Quattro. Described as the world’s first “Premium Plus” hearing aid, ReSound LiNX Quattro has generated strong interest among the hearing loss community. As ReSound’s Chief Audiology Officer, I’ve answered many questions about this latest innovation in hearing to facilitate informed decision-making. Here are two of the most common questions I receive.

Can you share the latest features and improvements in ReSound LiNX Quattro? What makes it “Premium Plus”?

ReSound LiNX Quattro is the fourth generation of the LiNX hearing aid family. LiNX streamlined technology with Made for Apple hearing aids in 2014, and brought remote fine-tuning capabilities to audiology in 2017 with ReSound Assist, which allows for adjustment without an additional clinic visit. Both of these breakthrough features are included with ReSound LiNX Quattro, plus more.  

Built on a newly designed, powerful microchip platform, it brings users an unprecedented combination of benefits, while enabling hearing capabilities never before possible. Putting sound quality first, ReSound LiNX Quattro technology enables patients to hear more “Layers of Sound,” delivering an extended range of sounds never before heard clearly through hearing aids. The sound quality is natural; soft sounds are clear and loud sounds are rich, full, and distortion-free. Users enjoy an especially marked improvement when listening to music.

The powerful radio provides more reliable, faster streaming and connectivity to any wireless accessory or mobile device. Using the ReSound Smart 3D app, users can take advantage of on-the-go sound personalization such as changing hearing aid programs, adjusting volume, decreasing the level of background or wind noise in the environment, and adjusting streaming sounds from a mobile phone. Also included is a geo-tag function for frequently visited locations so users can return to their preferred location-specific settings as desired.

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Finally, ReSound LiNX Quattro is the world’s most advanced rechargeable solution. As many hearing aid users know, changing batteries weekly can be cumbersome, especially for those with impaired dexterity and eyesight. The built-in lithium-ion batteries eliminate the weekly need to change batteries with a rechargeable battery that lasts up to 30 hours. The recharging case holds 90 hours of portable power, greatly reducing the fear of depleted batteries.

How does ReSound LiNX Quattro actually extend the range of hearing? 

ReSound LiNX Quattro introduces four newly designed microchips that combine to deliver twice the memory, 100 percent more speed, and 30 percent more computing power—with 20 percent power consumption reduction.

The new chipset allows for an increase to 116 dB of input dynamic range so that sounds enter the hearing aid without distortion. In addition, the frequency bandwidth has been extended to 9.5 kHz both for the hearing aids and for sounds streamed to the devices.

In many other hearing aids, sounds outside these ranges are not heard or are heavily distorted. With ReSound LiNX Quattro, sounds typically missed such as birds singing, higher-pitched speech, or music are clearly discerned.

And by expanding access to sounds, especially higher frequency sounds, we observe improved spatial perception in users, with more cues for localization.

Learn more about ReSound LiNX Quattro.

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Laurel A. Christensen, Ph.D. is the Chief Audiology Officer of GN ReSound Group.  In this role, she leads Global Audiology & User Experience in Research and Development.  She holds adjunct faculty appointments at Northwestern and Rush Universities and is a former member of the Executive Board of the American Auditory Society and a member of the Advisory Board for the Au.D. Program at Rush University.  In 2015, she received the Distinguished Alumna Award from the Department of Speech and Hearing Sciences at Indiana University.

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A Reminder During Newborn Screening Awareness Month: Infant Hearing Tests Are Vital to Children’s Futures

By Nadine Dehgan

Hearing Health Foundation (HHF) joins the healthcare community and all parents in celebrating Newborn Screening Awareness Month.

Newborn screenings assess babies’ health within the first 24 to 48 hours of life. These quick and painless evaluations check for potentially harmful conditions that would otherwise not be apparent at birth. Included in this process are screenings for hearing loss, which is detected in three out of every 1,000 babies born in the U.S. 90 percent of babies identified with hearing loss have parents with typical hearing.

Hospitals use two safe and comfortable newborn hearing screening tests. Otoacoustic emissions (OAE) tests examine the nearly inaudible sounds, or emissions, produced by ear stimulation using a soft foam earphone and microphone. The inner ears of babies with typical hearing produce these emissions when stimulated by sound, while those with a hearing loss greater than 25-30 dB do not. Auditory brainstem response (ABR) tests measures how the hearing nerve responds to sounds. A hearing specialist plays sounds into the baby’s ears, while bandage-like electrodes are placed on the baby’s head to detect brain wave activity. Printed results show a pass or fail result.

A proactive approach to hearing health begins at birth. An early hearing loss diagnosis—before hospital departure—enables parents and families to pursue intervention, such as hearing devices, assistive devices, and/or sign language, as promptly as possible. Intervention of any kind permits children with hearing loss to enjoy healthier outcomes related to speech and language acquisition, academic achievement, and social and emotional development.

“When [profound bilateral] hearing loss was confirmed, I felt I had to do everything in my power,” recalls Dr. Nada Alsaigh, a pathologist, who made sure her son, Alex, was first amplified with hearing aids at three months. “We were lucky to know early, so Alex was not affected in a negative way.”

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“[My son] Ethan received his first set of hearing aids when he was eight weeks old,” explains Jason Frank, a corporate attorney and member of HHF’s Board of Directors. “It’s really been amazing to watch over the last seven years how far he’s come. He has a wonderful appetite for learning.”

Cognitive advancements for children like Ethan and Alex would not be possible without support for universal newborn hearing screening (UNHS) from HHF and likeminded organizations. In 1993, a staggeringly low rate of newborns—five percent—were tested for hearing loss in the hospital. This number increased to 94% by the end of the decade. Today, nearly all babies undergo this vital test.

“The institution of infant hearing screening at birth has been critical to speech and language development in the first two years of life [of a child with hearing loss],” says Anil K. Lalwani, M.D., Columbia University surgeon and member of HHF’s Board of Directors. “Before infant hearing screening was mandated, the average age of diagnosis for hair loss in a child with profound was two-and-a-half or three-years-old—later than recommended to begin intervention.”

In fact, a 2017 University of Colorado Boulder study of children with bilateral hearing loss further underscores the need for identification of hearing loss at a young age. Primary investigator Christine Yoshinaga-Itano, Ph.D., and team found that children who received intervention for hearing loss by six months had significantly higher vocabulary quotients than those who did not.

Though UNHS is highly-regarded by hearing experts like Drs. Lalwani and Yoshinaga-Itano, its security has been jeopardized. Last year, proposed cuts to the 2018 federal budget threatened to remove the $18 million allocated toward newborn hearing screenings in all 50 states. Given the lifetime costs of profound untreated hearing loss of nearly $1 million, a $18 million investment in screenings is surely worthwhile. Both the fiscal and health benefits of UNHS generated bipartisan support and, in 2017, the Early Hearing Detection and Intervention (EHDI) Act became law to sustain funding until 2022.

“We can’t imagine what it would have been like not to know,” Jason says. Ethan taught himself to read at three-and-a-half years old, which Jason and his wife believe is a direct result of Ethan’s access to sound and language at a very early age.

HHF implores policymakers to preserve newborn hearing screenings come 2022. The elimination of UNHS would be a tremendous disservice to our nation’s children with hearing loss. Learn more about how early intervention created positive health outcomes for Ethan and Alex in HHF’s short video (also shown above).

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How to Buy Hearing Aids

By Barbara Jenkins, Au.D., BCABA

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A friend’s mother needs hearing aids. She has a daughter in the hearing industry, she has insurance to cover hearing aids, she holds a Ph.D. in molecular biology, and she is still overwhelmed and confused by where to go, what the options are, and what is best for her.

Sound familiar? There is so much information—and disinformation—available about hearing aids that even some physicians are confused.

As with any big purchase, selecting a hearing aid can be difficult and confusing if you don’t have the right information or know the correct questions to ask. Bring a copy of this checklist with you on your next appointment, and feel confident in your decision to improve your life through better hearing.

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Hearing Healthcare Checklist

1. Where do I go for a hearing test?

Most hearing loss (up to 90 percent) is a result of non-medically treatable issues. But that means as many as one in 10 people will have a medical issue associated with their hearing loss. If this is your first hearing evaluation it would be prudent to see your primary care doctor first, then be referred to a specialist for a diagnostic audiogram (hearing evaluation).

Audiologists have a minimum of seven years of university training (master’s or doctorate level). Hearing instrument specialists can perform hearing tests but do not have the medical training to rule out medical issues—causes for hearing loss such as syndromes, Ménière’s disease, Usher Syndrome, sudden-onset, genetics, ototoxic drugs, etc.

If you know that there is no medically treatable issue associated with your hearing loss, either type of provider should be fine. If you’re in doubt, ask your physician which professional they recommend. They might refer you to an ENT (ear, nose, and throat specialist, or otolaryngologist).

2. Where do I buy my hearing aids?

Typically, once an audiologist or hearing instrument specialist has evaluated your hearing, you should be able to purchase your hearing aids from them. Requirements differ by state, but generally speaking the professional is trained in hearing aid selection, fitting, and care.

Make sure you are comfortable with the quality of care and the options offered by the provider. If only one brand of hearing aid is available, that’s a red flag. Be sure your provider offers a range of choices, in all styles and at all price points.

You can also opt to get a second opinion. This will give you additional provider choices, so you can go with the person with whom you feel most comfortable. After all, you will be starting a relationship that may last for years.

3. What style of hearing aid is best for me?

A hearing aid’s style (shape and configuration) is determined by the severity of hearing loss, manual dexterity and vision ability, comfort, and/or cosmetic appeal. Whether you get a larger, behind-the-ear hearing aid, or one that is nearly invisible in the ear canal, the cost is roughly the same. Discuss options with your provider and ask about the benefits and drawbacks to each type of device. Here is a brief overview of hearing aid styles, categorized from a larger size to smaller:

Behind-the-ear (BTE); receiver-in-canal (RIC) (also known as receiver-in-the-ear, RITE): These are currently the most popular due to durability, comfort, and cosmetic appeal. They may be a bit more difficult to put in the ears at first, but since less of the circuitry is inside the ear, they usually offer more natural sound. Also, RICs can be discreet, with only the speaker wire visible at the top of the outer ear.

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In-the-ear (ITE); in-the-canal (ITC): This category is among the best for ease of use. Just one piece goes into the ear, with a portion of the device visible outside the ear. Many people like ITEs because they are easy to insert into the ear, and the battery
life is better than that of their smaller, ITC cousins.

Completely-in-the-canal (CIC); invisible-in-the-canal (IIC): These typically fit deeper into the ear and are a very good choice for people who wear helmets or use stethoscopes. Since they are deep in the canal (making them less visible), the most common complaint is that they may not feel as comfortable as the BTE styles, and depending on usage you must change the batteries once or twice a week. (BTEs and RICs often use larger batteries for more power, and last longer.)

4. Which fidelity level is best for me?

Once you have chosen your preferred style of device, you must choose the fidelity (technology) level of the computer chip in the hearing aid. This is where the cost differences in hearing aids become apparent.

Most manufacturers have three levels of fidelity in their newest hearing aids as well as in their economy-priced models. The higher the level of technology, the better and faster the hearing aid can separate noise from speech. This means the speech and sound information passed to your brain is more accurate. Every level will help one-on-one conversations in quiet environments; the more advanced chips will boost clarity and noise reduction even more effectively. In most cases, get the best hearing aid you can afford, but don’t feel pressured into a decision. Take advantage of the 30- to 60-day trial period that is required in most states (in some cases paying a small fee to return the devices).

5. What other special functions do I need for better hearing?

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In the past few years, new features have emerged that have dramatically changed how we can interact with hearing aids.  

Rechargeable batteries: Rechargeable hearing aids are now available, requiring changing the battery only once every one to three years. These devices are recharged by placing the entire hearing aid unit on its charging dock. Not having to frequently manipulate the battery door is very helpful if you have vision or dexterity issues or if you tend to forget your batteries.

Almost waterproof hearing aids: There are now hearing aids that are so waterproof they actually dry themselves when they get wet. They are also dust- and shock-resistant. These are great for people who frequently spend time outdoors or who just perspire a lot. While it is not recommended swimming with them, these devices should survive taking a shower if you forget to take them out.

Bluetooth-enabled hearing aids: Many manufacturers now give you the ability to adjust your hearing aids with your smartphone, using Bluetooth wireless connectivity. You may even be able to stream sound directly to your hearing aids without the use of an additional device like a neck loop. If you’re tech-savvy, this may be for you.

Once you’ve gone through the items in this checklist, I hope you feel more confident about making decisions and improving your hearing.

Staff writer Barbara Jenkins, Au.D., BCABA, serves as Colorado’s professional state commissioner for people with hearing loss and was awarded the 2010 Leo Doerfler Award for Clinical Excellence by the Academy of Doctors of Audiology. Her office, Advanced Audiology, won the Most Humanitarian Hearing Care Office Award at the 2015 Signia Aspire Conference. For more, see advancedaudiology.com. This article also appeared in the Fall 2017 issue of Hearing Health.

Receive updates on life-changing hearing research and resources by subscribing to HHF's free quarterly magazine and e-newsletter.

 
 
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FCC Announces Intent to Automate Phone Captions

By Kathi Mestayer

The Federal Communications Commission (FCC) recently announced in the Federal Register that it intends to allow telephone captions (IPCTS) to be 100 percent provided by automated speech-recognition (ASR) software. I wrote about how it's done currently by a human/software "team."

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The change would save money by making the role of the human captioning assistants optional. But nobody knows what the effect would be on caption quality, as there are no current standards for accuracy or delay in telephone captioning provided under the Americans with Disabilities Act, and regulated by the FCC.

Underscoring that issue is the letter posted by a group of consumer groups, which states:

"The Commission is putting the cart before the horse by allowing ASR-based IP CTS services without developing standards and metrics for the provision of IP CTS to ensure that consumers receive robust service from all providers, regardless of the underlying technologies used to provide the service. Inaccurate and unreliable IP CTS service stand to substantially harm consumers who rely on them for communications with family, friends, employers, and commercial transactions and lack the means to qualitatively compare services in advance."

That document, available online, was filed by the Hearing Loss Association of America, Telecommunications for the Deaf and Hard of Hearing, Inc., National Association of the Deaf, and Gallaudet University’s Rehabilitation Engineering Research Center on Technology for the Deaf and Hard of Hearing.

The public comment period for this proposed change is open until Sept. 17, 2018. You can submit a formal comment at the top of the page in the Federal Register that announces the proposal.

Kathi Mestayer is a Hearing Health magazine staff writer.

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Hearing Loss Film “Hearing Hope” Captures Personal Strength, Scientific Vision

Hearing Health Foundation (HHF) has created a new short film, “Hearing Hope,” to expand awareness of hearing health through the voices of those who benefit from and those who carry out the foundation’s life-changing work.

 "It took me longer to talk than most kids. Because I couldn't understand what they were saying so I couldn't copy it," explains Emmy, 7.

"It took me longer to talk than most kids. Because I couldn't understand what they were saying so I couldn't copy it," explains Emmy, 7.

The third most prevalent chronic physical condition in the U.S., hearing loss can affect anyone—from first-grader Emmy to retired U.S. Army Colonel John—but its reach is often underestimated. “It’s one of the most common sensory deficits in humans,” explains cochlear implant surgeon Dr. Anil Lalwani. “I think we have to go from it being hidden to being visible.”

Both a hearing aid user and cochlear implant recipient, seventh-grader Alex is doing his part to make hearing loss less hidden. Smiling, he says he wants people to know that hearing with his devices makes him happy. John wishes to be an advocate for veterans and all who live with hearing loss and tinnitus.

 When she received her hearing loss diagnosis at 17, NASA engineer Renee never thought she'd be living her dream.

When she received her hearing loss diagnosis at 17, NASA engineer Renee never thought she'd be living her dream.

The film also highlights resilience in response to the challenges associated with hearing conditions. Video participant Renee saw her dream of becoming an astronaut halted at 17 when her hearing loss was detected. Now she helps send people to space as an engineer at NASA.

Sophia describes the “low, low rock bottom” she hit when she was diagnosed with Usher Syndrome, the leading cause of deafblindness. Yet she feels special knowing her disability shapes her and sets her apart.

Jason recounts having no resources for hearing loss in children when his son, Ethan, failed his newborn hearing screening. Today he’s grateful for Ethan’s aptitude for language, made possible through his early hearing loss intervention.

With the support of HHF, more progress is made each year. “I’m glad that the doctors are trying to figure out how fish and birds can restore their hearing,” says Emmy.

For the past 60 years, HHF has funded promising hearing science and in 2011 established the Hearing Restoration Project (HRP), an international consortium dedicated to finding biological cures for hearing loss using fish, bird, and mouse models to replicate the phenomenon of hearing loss reversal in humans.

“If [the HRP] can achieve that goal of hearing restoration...that would be a marvelous thing for hearing loss,” reiterates Dr. Robert Dobie.

Through “Hearing Hope,” HHF would like to share its mission and message of hope to as many individuals as possible and reassure those with hearing loss and their loved ones they are not alone. As an organization that channels all efforts into research and education, HHF would greatly appreciate any assistance or suggestions to increase visibility of the film.

Watch the full film at www.hhf.org/video. Closed captioning is available.

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ReSound HearSay: Be The Voice of Hearing

By Tom Woods

"A journey of a thousand miles begins with a single step.” For many individuals who know—or suspect—they have a hearing loss, the first step in their journey to better hearing can prove difficult.

It took more than two years for Francine Murphy of Peoria, Arizona to take action. She says, “I was in denial and I was concerned that it would not help, especially if the sound quality was poor. Start with acknowledging that there may be an issue and start with your family doctor. The best resource I found was my audiologist.”

  ReSound hearing aid user Francine Murphy.

ReSound hearing aid user Francine Murphy.

Francine is clearly not alone. For many, the delay is due to uncertainty, apprehension, and lots of questions. In the U.S. alone, more than 25 million people who could benefit from hearing aids have yet to take that first step. 

We believe that hearing is fundamental to life. When it starts to decline, it’s imperative that everyone understands, and has access to, the best hearing technology.

That’s why we created ReSound HearSay, an online resource that gives people who are successfully managing their hearing loss an opportunity to lend their voice to educate and inspire others to seek care.

We think that peer-to-peer information sharing is critical in this learning process.

“Get your hearing tested now,” urges John Chynoweth from Orlando, Florida. “Determine exactly what your hearing is like now (get a baseline). Work with a hearing specialist to determine the environments where you struggle to hear. Try different types of hearing aids to find the right ones for you.”

I’m reaching out to readers of this blog to share their hearing journey. Just like Francine and John, you can help those who are just starting to realize hearing loss or considering a hearing aid, and may be hesitant or unsure where to start.

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Through posts, you’ll encourage others into action by addressing common concerns and questions, giving them practical advice to help navigate the process, from diagnosis to hearing aids. And you’ll help them understand the important role of the hearing care professional.

Be the “Voice of Hearing” and help others on the path to better hearing. Please take time today to visit ReSoundHearSay.com to share your insights and experience.

Tom Woods is President, ReSound North America.

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How One Institution is Changing South Africa’s Approach to Pediatric Hearing Loss

By Vicky Chan

Carel du Toit Center (CDT) has been at the forefront of hearing loss education for the past 45 years—offering a mainstream education and speech development programs for children aging from infancy to 10 years old in Cape Town, South Africa. Although an estimated 6,000 babies are diagnosed annually with permanent bilateral hearing loss in the country, early detection and intervention programs are extremely uncommon. CDT is one of the only institutions in the area that offers an early intervention program for children with hearing loss and their parents.

  A young student with hearing loss. Credit:  Carel du Toit . 

A young student with hearing loss. Credit: Carel du Toit

Because the damaging effects of hearing loss are widely dismissed by South African legislation, 72% of the nation’s hospitals do not offer any form of hearing tests and fewer than 1% plan to implement newborn hearing screenings. Consequently, 90% of newborns do not have access to a hearing test and families do not receive information about pediatric hearing loss.

Hearing loss is usually detected only after the child’s caregiver notices unusual behavior or speech and language delays. The average age of diagnosis for a child with hearing loss in South Africa is 31 months old, and the typical age at which one is first fitted with hearing aids is 39 months. This is well beyond the critical time period for a child's speech and language development, which depends immensely on the brain’s responses to hearing in the first two years of life.

To help parents understand their child’s hearing loss, the school provides a family-centered early intervention program in their CHAT (Children Hear And Talk) Centre. Coaching families about how to cope with hearing loss is a key component in teaching a child to talk. Parents are encouraged to attend weekly sessions at the CHAT Centre where they are taught to incorporate speech into their family’s daily routine so their child can continue to develop language and social skills at home. The CHAT also provides weekly sessions for children who are too young for school so they can be enrolled in an early intervention program as soon as possible.

“This is your journey with your child and you are absolutely equipped to teach your child to talk through listening,” one teacher says of CHAT. “It may not have been what you were expecting—but embrace it.”

The school employs more than 60 staff, including teachers, early interventionists, social workers, audiologists, psychologists, and speech therapists, who strive to create a natural environment that promotes listening experiences and intensive speech training. Students are fitted with the appropriate hearing technology and learn with the support of the school staff and their parents.

“I had a passion for special needs children and ended up in deaf education,” reflects an CDT educator. Echoing this sentiment, another teacher comments, “Teaching a child a new word or concept everyday makes it very rewarding. You are changing their lives on a daily basis.”

CDT understands that early diagnosis and intervention is the cornerstone for obtaining the best outcome for infants with hearing loss, which is why the center also partners with social services and South Africa’s State Health Department to provide equipment and personnel to test high-risk babies in the largest hospital in West Cape. With a mission to ensure all children in South Africa can function optimally in a hearing world, CDT is making strides to change outcomes for those with hearing loss nationwide.

For more, visit http://careldutoit.co.za/.

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