Become a part of our online scrapbook by sharing your own story about how hearing loss has affected you. Inspire others who are touched by hearing loss so that we can help raise awareness about the prevalence of hearing loss and what we're doing to help make it a thing of the past.
I did get a miracle....True....half the room is still silent...but hope is on the horizon. I feel that...and believe that.... I keep the faith!! And I hope you all do as well. Hear more of Liz's story.
In 1995 I had tinnitus in one ear which eventually went to both ears. I was suicidal the first 2 months.. I could not sleep, had hyperacusis (a sensitivity to noise) so severely that I could not drive, go to the mall and felt very claustrophobic. I found I had a fast growing acoustic neuroma. It was growing at a millimeter a month, or a little over a centimeter a year. Today I have my life back and am enjoying it while waiting for a cure.
Our daughter Elana was 6 months old when she was diagnosed with a severe-profound hearing loss. She is now almost 23 years old. I will never forget the moment when i knew our world was about to change. The audiologist kept saying "let me check the machine."
After spending my adult years working with children with special needs, I found myself with two significant breakthroughs under my belt. In 2003, a 17 year old non-verbal autistic teenage boy learned through a new technique, aromatherapy, to say "Mama", "Mary" and "No". Three very important words.
Ever since I was six months old, I have lived with hearing impairment. Mom said I cried all night and slept all day for the first 6 months of my life. I never heard a bird sing, a dog bark or the wind howl until I was nearly 25 when I got my first set of hearing aids. What a difference it made.
My daughter did not pass the newborn screening in the hospital. The tested her multiple times before discharge and she never passed. We have always taught her to be proud of her hearing aids and not let anything hold her back.
When I was about 3, my parents noticed I wasn't hearing good and withdrawing in group settings. Had me tested and at age 4 got my first set of 4 sets of tubes. With that first set of tubes, my mom describes watching the scenery like having new pair of glasses on but I could suddenly hear all the cars, wind, birds!!!