My daughter, Mira, who is now 9 years old was diagnosed at 3 weeks of age. I remember the day vividly. She had failed the new born hearing screening when she was born. They had told me this was normal and that there was a lot of fluid. When we returned for follow up she failed again and I was told she needed an ABR. There was not a thought in my mind that something was wrong.
At the ABR a couple of weeks later it was then that we received news I never had even thought of. Starving my new born baby in the early morning hours to bring her to a test in a hospital where she needed to be still and sleeping I watched as they brought us into a very quiet sound proof room with a small crib and wires. I watched as they put little tubes into my daughters ears attached to a computer and the sensor pads on her head.