Become a part of our online scrapbook by sharing your own story about how hearing loss has affected you. Inspire others who are touched by hearing loss so that we can help raise awareness about the prevalence of hearing loss and what we're doing to help make it a thing of the past.
It was so hard to even talk about it at first, but now I feel that we know so much more and have amazing resources as well. Af first we were so scared but now we know that Jace is perfect, happy and healthy, he just needs a little bit of help.
I did get a miracle....True....half the room is still silent...but hope is on the horizon. I feel that...and believe that.... I keep the faith!! And I hope you all do as well. Hear more of Liz's story.
In 1995 I had tinnitus in one ear which eventually went to both ears. I was suicidal the first 2 months.. I could not sleep, had hyperacusis (a sensitivity to noise) so severely that I could not drive, go to the mall and felt very claustrophobic. I found I had a fast growing acoustic neuroma. It was growing at a millimeter a month, or a little over a centimeter a year. Today I have my life back and am enjoying it while waiting for a cure.
Our daughter Elana was 6 months old when she was diagnosed with a severe-profound hearing loss. She is now almost 23 years old. I will never forget the moment when i knew our world was about to change. The audiologist kept saying "let me check the machine."
After spending my adult years working with children with special needs, I found myself with two significant breakthroughs under my belt. In 2003, a 17 year old non-verbal autistic teenage boy learned through a new technique, aromatherapy, to say "Mama", "Mary" and "No". Three very important words.